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The Invisible MS Symptom of Grieving

Something IMO most people fail to realize is the grieving process one goes through caused by the symptoms of MS, the lack of understanding from family and friends, etc.

MS grieving

Sometimes it’s like being in a coffin with a glass window as the world continues without you. With each function taken by MS, with each event missed, with each family member or friend that has drifted away… there is a grieving process.

The things we grieve for

You grieve for the you that is no more,
And for the laughter you shared with others before.

You grieve for the words that once flowed with ease,
As you look to another with eyes that say, “Help me please.”

You grieve for your talent that inspired others to smile,
And have to accept that your body just wants to sit still for a while.

You grieve for the care giver that is still instinctively you,
As you sit and watch another do what you feel you need to do.

You grieve for the person you once thought another to be,
As your heart breaks when they fail to understand or see.

Grieving is meant for when a life comes to an end,
Yet with MS to grieve is a lifetime to spend.

Take heart my dear MSers and know,
That alone in our coffins a light can still glow.

Sometimes it’s dim and other times bright,
And even in our own darkness, we may be someone else’s light.

To grieve is human and it’s what we must do,
But we must also remember to love the you, that is you.

Smile, it’s just me.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Donna Steigleder moderator
    1 week ago

    @ Janeel Totally agree with you. I think that with each permanent change, each dream lost, each shift in future choices made due to MS individuals feel the loss, and a period of mourning is necessary so that healing can occur. MS robs you of so much. Grief is such a healing process. Yes, it hurts but to allow yourself to experience the pain gives you the freedom to let go and move forward. Excellent work. Donna Steigleder Moderator

  • Janeel author
    1 week ago

    @Donna Steigleder,
    Thank you, for taking the time to read my words. I appreciate how well your understanding of them are. Grieving is a painful event, yet the healing makes us stronger than we ever knew we could be.

    I am humbled by your compliment of my work.

    Thank you.

  • doctp12
    2 weeks ago


  • Janeel author
    2 weeks ago

    Thank you for taking the time to read my words.
    Blessing be upon you and your journey!

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