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Help with Spasticity

I am a 36 yr old woman who had recently been diagnosed with MS almost 3 yrs ago.

My biggest problem is spasticity. Everyday my muscles feel like im carrying anchors on my calves and quads. My legs feel so heavy as i try to lift them just to walk. I try stretching and exercise to no avail.

Muscle relaxers do just that, they relax my muscles to really all jittery and make me super tired.

Please, if anybody has any tips or pointers that has worked for them please share!!! Sincerly, Desperate to walk

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Comments

  • stephanieb116
    9 months ago

    I am in the same boat,,the hell with the infusions.i want help for my symptoms now..currently on oxycodone which is all that somewhat possibly calms them dwn.i cry for hours at nite…been on everything yet dr.wont let me go on baclofen pump.but orally didn’t help.on tegritol..Valium neurontin oxycodone miracle… I’m done mentally…

  • Shelby Comito moderator
    9 months ago

    I’m so sorry to hear what you’re going through, @stephanieb116. I can’t even imagine how frustrating it must feel to have tried so many things and still not have found significant alleviation for your symptoms. We are here for you as you go through this and I truly hope you experience relief soon. Thinking of you, Shelby, MultipleSclerosis.net Team Member

  • lougirl
    6 years ago

    Thank you for posting this – I’m suffering from the same thing….I think, anyway. Is it a super tight feeling, but not necessarily spasms? I always feel like my muscles are super tight, but then when I go to rub them, they don’t feel tight at all, yet it’s still so painful. I’ve been looking into the magnesium supplements like Lisa mentioned. Good luck!

  • Lisa Emrich moderator
    6 years ago

    Hi M Chappelle,
    Spasticity has been one of my MS symptoms which comes and goes. When MS is flaring, the spasticity can become excruciating. Stretching is challenging because sometimes the spasticity comes from muscles being overly stretched as nerve messages get confused. Massage has been somewhat helpful for me when this happens. At different times in the past 5 years, I’ve taken anywhere from 10mg to 80mg baclofen daily. Work with your doctor to find a treatment that works for you. Also, I’ve heard other MS patients talk about how taking magnesium supplements have helped them. Definitely talk to your doctor before adding any supplements or changing your meds. Don’t be shy about using a cane to help accommodate those heavy legs and avoid getting overly fatigued. I hope this helps.

  • stephanieb116
    9 months ago

    I’ve been on magnesium..not helpful to me either..stretching etc..I drop..break things… ms sucks

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