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In Limbo

Hey everybody. I have not been diagnosed with MS yet. I have been diagnosed with so many other things though. Last week I went to my neurologist again at the request of my primary doc because she wanted me to have a lumber puncture to look for MS. My neuro showed me my numerous MRI scans on my brain which showed daro spots all over my brain- 20+. He said it was iron deposits from bleeding in my brain which could be caused by seizures. When I got home I looked up iron deposits on the brain and everything I read pointed to MS. For 15 or so years I have gone to neurologist because of too many symptoms to list and I’ve even mentioned ms but none of them would go that route. I am now trying to get a second opinion about what this neuro said because he wanted me to stop taking some medicine I take for heart. Anybody in Jacksonville, Florida know some good ones? Sorry it’s long.

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  • annk
    4 months ago

    I’m out of state; but have ms for 40 yrs., do carry iron overload gene, brother had active high iron in blood…and has blood taken to lower his iron levels. I agree w/u must be some connection between iron level and MS…especially for men.

  • annk
    11 months ago

    Please consider HIGH IRON LEVELS in your blood…a fairly recent identified cause of multiple symptoms.

  • Shasha
    1 year ago

    I had seizures due to dairy so I now I take Osteoprocare and also no gluten which helps cells be made better as it helps intestines heal so more nutrients absorb. Hair test shows good minerals/heavy metals. Detoxing may help chemicals reactions work better and if good minerals are low intestines may not be absorbing due to gluten/GMO/antibiotics/Lyme. Not all MS people have Lyme. When I was low in Vit A my blood brain barrier/intestines/eyes/kidneys were affected and my lungs could not soak air in. Natural help saved my life and helps me fix what needs to be fixed. I do no gluten/dairy/soy/sugar/GMO/food with a label…take vitamins/good oils/minerals…probiotic….LDN…detox. MS people maybe Celiac. Tests may not work to diagnose it. The American diet hurts people. Pets/people need no grain to be healthy.

  • Christina Hegarty PT, DPT moderator
    1 year ago

    Hi @Nanatessie51,
    I’m sorry you’re in this limbo right now where you don’t exactly know what is going on with your body. It can feel very overwhelming to not have clear direction! In addition to any feedback you may get from the community, I wanted to share with you a resource from the National MS Society that helps find MS care providers in your area. I went ahead and did a search just for the state of Florida and did see that at least one of the listed was in Jacksonville Beach. Here is the link: I hope this is helpful for finding another neurologist who may be able to offer a different take. Thank you for reaching out to us!
    Wishing you the best,
    Christina, Team

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