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It isn’t always MS

Hi all –

I was diagnosed with MS in 2008, after living with it for easily ten years before diagnosis. I assumed I was out of shape when my legs would ache, or that I was low on Vitamin B. Didn’t help being a nurse. I can diagnose myself quicker than you can say “wrong!” I DID, however, diagnose my MS and was right, unfortunately.

But now it’s a sneaky thing, this MS. My legs go into spasm when I walk. “Oh well,” I told myself, “I guess I’ll have to look at scooters.” Cheerily I start researching the really fast ones, with the flags and the headlights, planning to speed around if I have to use one. I buy a car that has room to put a scooter or wheelchair in. “Plan for the worst, hope for the best,” I figure.

Well, the pain in my knees was severe osteoarthritis, masked by MS numbness. A few years later, bionic knees. No scooter. I was kind of disappointed.

The legs started bothering me again lately, shooting pains. Turns out that wasn’t MS either, but a few bones out of joint because I had been walking with a limp for years. Pinched nerves, not spots in my spine. Fixing that now.

Have the urinary problems, found out I had a UTI, then that I am ever so slightly diabetic. Explains some of my fatigue and blurred vision, too.

Personally, I figure that if I have MS, I should get a “get out of jail free” card for all other diseases. Apparently this isn’t so. In one way, it’s a bit reassuring. The MS, which I can’t do much about (other than the drugs, healthy eating, exercise, rest, etc), isn’t getting worse at the rate that I thought. The things I CAN do something about (like the diabetes, the posture, the excess weight) – they are the bigger problems at present.

Of course, in another way, it’s discouraging. So much work ahead. When I could be screaming around the countryside, mowing over dandelions in my all terrain scooter!

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Comments

  • yql098
    3 years ago

    I have a sensation or feeling that I am walking with cement or a heavy weight on my legs after walking for several minutes…going to the grocery store for example. I also experience fatigue, weakness and poor coordination in my legs, among other symptoms associated with MS. Several MRI’s appear to rule out MLS as well as diagnosis of two neurologists an internal medicine doctor and a vascular surgeon. This has been going on for a little less than a year. Any thoughts or comments?

  • Dabble58 author
    3 years ago

    Could be a variety of things. Are you generally healthy? Do you have diabetes? Do you exercise? Have you had a spinal X-ray? It could be anything from nerve problems to muscle problems to Lyme disease to CFS. Have you seen a physio? They can assess to see if there is any weakness and give you some ideas about how to work with it – I couldn’t survive without my physiotherapist!

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