Just Tired!

I feel exhausted at the moment… but reading a lot of the stories here really helped me. I am not alone :–) Thanks!!!

My whole life changed

I was diagnosed with MS at Xmas 2008, and my whole life changed. At the time I was living in London, had a partner, a job, and loads of good friends. But with the diagnosis I had to move back to my parents’ (they do not live in London), as I could not walk and did live alone. Then after three months my partner left me. It was too much for him. And I also lost my job.

Back on track

Since then I have worked hard to get my life back on track. I did not return to London, but I found a new job in a smaller town. I also moved into a nice little flat and I now have a new network of friends. Which is great.

Unfortunately my walking is slowly getting worse and I need a wheelchair for longer walks. I had a new partner, but we separated a while ago… so I am on my own again.

Just tired

I sometimes feel very lonely and it is a struggle to get out of bed and into work in the morning. I do love my work, but I am tired of doctors appointments, meds and struggling when walking. It feels all too much. I know things could be a hell of a lot worse, but I guess I am just tired. It feels a bit like a depression… unfortunately we have depression in the family.

Sometimes I wonder if I am not strong enough, wonder why I can’t be more upbeat. After all, feeling miserable does not really help. But after reading a few posts here, I am glad to know that what I am feeling is “normal” under the circumstances. Thanks.

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Comments

View Comments (2)
  • Erin Rush moderator
    4 weeks ago

    Hi Eaglenose!

    I think you have every right to have those down days where you just aren’t feeling very happy-go-lucky. MS is a tough, life changing condition and no one should expect a person with MS to be upbeat every day.

    I am glad you have a job you enjoy and your own home again, although I am sorry your MS symptoms seem to be progressing.

    Many of our members have shared about the annoying symptom of fatigue and how draining and frustrating it can be! As Dontheo shared, it can be an overwhelming and misunderstood symptom.

    I hope your new friends are there to support you on the good days and on the not-so-good days. And, if love is in your future, I hope you find a partner that loves you for you and is able to accept your MS as well. While we wish no one had this unwelcome third wheel in relationship, we know that some of our members have found true, lasting love, despite the MS!

    Thank you for sharing with the community!

    Best, Erin, MultipleSclerosis.net Team Member.

  • Dontheo
    4 weeks ago

    The fatigue is what I deal with most of the time. Its so hard to explain to anyone that I am not tired, I just cant find the energy to do a task. I feel for you and the difficulty of getting out of bed some days. For me it’s usually a task. Can be as simple as having to fill out some form and send it back to some agency. Drugs work but I dont like taking them. When they wear off it is twice as bad.

    Stay focused and good luck.

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