Last updated: July 2023
I write this as Kathy's husband of 41 years. I enjoy reading how people cope with this disease - I still find them uplifting. But I have to point out that not all stories are good.
Kathy was diagnosed in the 1990s but did not really start having issues until 2015. I am so sure of that year because it was the year she had to stop driving, and I had to purchase a vehicle she could enter and exit. Over the next few years, despite exercise, various meds, and close medical monitoring, her deterioration was marked. She went from a cane to a walker, to a wheelchair, to being bedbound.
She had a bright outlook on life
She battled a host of conditions that resulted from her inability to be active leading to infections and osteoporosis. While I was always amazed at how bright her outlook on life remained, I knew she missed all of the things she used to do, even something as simple as writing a list. And I hurt for her. She passed in March, and COD was complications from multiple sclerosis. And I miss her.
What does advocacy mean to you as someone living with multiple sclerosis? Please select all that apply: