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Almost Forgot My Legs!

I had a house cleaning job today (the only one I have left that I can still do). I always wonder if I’m going to make it through as they keep the house VERY warm which takes a while to cool down once you turn down the thermostat, as well as having two flights of stairs.

Are my legs coming home with me or not?

I’m thankful that I have it though, as it gives me SOMETHING to do once every couple weeks, and I always feel some sense of accomplishment – like yes! I was able to do it! Today was hard, and I don’t even know if I remembered to put the vacuum away. My legs felt extremely weak and I was wondering if they planned on coming home with me or not? Well I made it home legs and all, and didn’t even get stopped by the police. Good thing because I forgot my purse (with driver’s license) at home!

Feeling a little less alone

I’ll tell you, being able to share stuff like this is SO cathartic because I know you guys will understand and also hopefully it encourages and reminds someone else that they’re not alone. xxxxxx’s

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Comments

  • Janus author
    5 months ago

    Hi Potter,
    thank you so much for sharing your own experience!
    You just never know for certain which way the day will turn, do you!? I’m so glad though that at least with everything you went through on that particular day, it ended well for you and you at least had a good time!

  • potter
    5 months ago

    It is so frustrating to have a day start out bad when you were needing to have a good day. We were meeting friends for lunch that we haven’t seen in to years and I really needed a good day. I had a bad night running to the bathroom working on a bladder infection. So I got up at 4 in the morning and took a Cystex plus and a Vit C. When back to bed until 8 so the medicine could work it’s magic. Woke up groggy and tired and thought I can do this all I need is a shower. Half way through the shower my left leg went numb. My first thought is a exacerbation but my leg also goes numb if the water is too warm. As I was drying my leg came back to life. Hooray! I was ready to get dressed but so tired I didn’t really want to. I just kept trudging on until it was time to go. Ended up having a great time so it was worth all of the effort. The sad ending of this story is that everyday is like this for people with MS if they are lucky and having a good day. Potter

  • Janus author
    6 months ago

    Erin,
    thank you so much for your support and encouragement. This is truly a safe and welcoming place to come to. Especially on those days when you feel like….

  • Erin Rush moderator
    6 months ago

    Thank you for sharing, Janus! And you feel free to share any and all your accomplishments with us! Cleaning a house with stairs all in one day? That’s a pretty big accomplishment in my opinion.

    Thank you for posting! We are happy to share in your victories! And we are able to commiserate on those days where the victories are few and far between. I hope you have some downtime to recover from cleaning and I am very glad your legs decided to come home with you!

    Best, Erin, MultipleSclerosis.net Team Member.

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