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It is hard for me to remember my life before MS. It was 1975 when I finally got the diagnosis, I was 21 and had had the symptoms long before the name was put on my crazy problem. In a odd way it was a relief to have a name to characterise the hurdles that faced me and in my ignorance I felt at the very least IT couldn’t kill me. This was before MRI’s and computers and medicine were available for MSers. My doctor said in hushed tones that I may never regain my walking skills, proper hand coordination or in general life as I had previously lived it. I am happy to say that Doctor was mistaken as now at the ripe “old” age of 61 I am a functional human (mostly), live om my own in my own house and do all the chores that go with it, have a handsome man who calls me MOM and most days (even days that MS tries to take me down) I am Living! Life is good, not perfect, but good. No one has ever said life was going to be easy and sometimes it is just plain hard, but there is a reason for everything and I feel blessed..lucky even, that I can do what I do and so far wake up every morning to face whatever challenges come my way. Life is what you make of it! I smile as I limp into the day before me on feet that I usually can’t feel and I am humbled because for whatever reason, I can still do something! Life…it is what it is…

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    4 years ago

    Being new here I would like to share some wisdom with you.. “life is the beginning and what you make of it is a life well lived.”
    Heres a poem I wrote ….
    Essence of miracles
    Flaming through the skies
    Escaping nights
    Finding the light
    Absorbing time
    Reliving our lives -fr.
    It began back in 07.. I clearly remember the day when my sight started malfunctioning .. I remember I was with my mom and sister we had just left a home that was for sale that we went to look at.
    Mom liked the home and area but did not like that there would be another family leaving in the same lot. I disagreed, but that’s my parents. While driving I began to notice my vision getting blurry. Sometimes it happens and once you kinda rub your eyes it goes away.. It wasn’t going away.. I shared it with my mom and we made an appointment with the doctor. He recommended the optomologist first, but he couldn’t find anything. Then he spoke to us and told us that he would recommend the neurologist. I couldn’t understand at that time what a neurologist did. Talking to the neurologist she explained it has to do with your brain and nerves. Somehow at that time it felt as if I was in a ball and I could barely here what the doctor was saying. She recommended a spinal tap which now I think about maybe was not necessary. Oh man the after affects of it was really bad.
    Then she decided that steroids may work. They did work my vision was back on track. Thank God. Now here 2015, years have gone by and I’m doing good and have found a new love of things… Books, writing and sharing wisdom. Let’s be the light of a life well lived. Thanks for sharing your story.

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