Living appointment to appointment

This is by far the biggest challenge I have ever faced in my 45 years on Earth. More challenging than being a market maker on the Nasdaq stock market without any real order flow, more challenging than my four years at Dartmouth, more challenging than trying to get a job after college, but I rose to the occasion each time and now I find myself trying to survive with this MonSter in my body. My nerves are severely damaged by this MonSter, but I press on.

I woke up this morning gracious for another day on Earth. Prayed my rosary, carefully went downstairs and let the dog out while I started to brew the coffee. Let the dog back in, fed him his medication and poured myself a cup of joe. Then I prayed the rosary while I waited for my very ill mother to wake up (She suffers from Parkinson’s disease). Her caregiver arrived at our house 1/2 hour later to begin our day.

Para-transit came to pick me up from our house close to 10 AM to take me to Retro Fitness over a mile away. Once there, I did some light weight training, built up my arms, legs, and abs, then I was through and ready to get the bus back home.

The bus came to pick me up before noon and took me home. I am still having some difficulty figuring out how I am not gaining any weight, muscle mass or otherwise. I am paying more attention to what I’m putting in as fuel. No processed or junk foods, lots of fruits and vegetables, like a professional athlete. All with the goal of performing better than my last visit to the MS Center. How quickly I can walk the 25 feet down the hall in the office is one of the tests used to evaluate the impact of this disease on my body. In six months, I am due for another MRI of my brain to further evaluate my performance internally as well. Scoring better on these evaluations has been the goal of my life and any way I can help anyone else do the same makes me feel like I’ve done anyone else with a similar diagnosis some good. I am a font of information because I have been through so much and would like to share it with anyone in need.

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Comments

View Comments (3)
  • tfs
    10 months ago

    Thank you for writing this. I just want to encourage you as well with getting out of the house for physical therapy. It’s important on so many levels. I have let it go since Christmas and really feel the difference. Good luck.

  • Julie
    10 months ago

    Hi Gooch!
    I’ve been living with this mess for about 18 years now. And that’s just since my diagnosis. They tell me I probably had it at least 10 years before that. Not sure that really matters other than I had 10 years that I didn’t know why I fell for no reason or why I would get confused easily, and on and on.

    It’s not an easy disease to live with but it sounds like you are doing the best you can. I slough off my PT when I know I should keep doing it. Keep at it! The more mobile you keep yourself the better. At least that’s my mantra. I wish you good health, stay strong!

  • Erin Rush moderator
    10 months ago

    Hi Gooch72! It sounds like you are working hard to manage your MS symptoms. I am so glad you took the time to share a piece of your story with our community. And don’t hesitate to post more stories anytime. We always welcome more insight, experience, and personal pieces from the community. It sounds like you have tackled life with MS much the same way you tackled your higher education and professional career — with laser focus and determination.

    I do hope your next evaluation shows the fruit of your hard work and dedication.

    Thank you for sharing and for being a part of this community!

    Best, Erin, MultipleSclerosis.net Team Member.

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