Skip to Accessibility Tools Skip to Content Skip to Footer

Living with MS

Not long ago, although it seems like an eternity, I was diagnosed with MS. It was then I started my journey down a path I wish on no one. For this is the path that was chosen for me, I’m not sure why, but we should not question only survive, right? Anyway, back to MS and my struggles. I’m not one to complain very often, this is why I like this site. It actually gives me the opportunity to “complain ” about myself with out feeling guilty. For years now, 10 to be exact, I have had MS. I have pains in my back,neck, arms, and legs. My left side , (arm and leg are very weak. I have little control of either, but I have learn in order to use my hand at all I hold it close to me. I also have experienced blindness in my left eye, which was reversed somewhat with steroids each time. My mind drifts as I do not remember things or get very confused. Sometimes I slur my words or stutter. Not to mention the depression at times. I also get dizzy, pains shooting into my right side of my body and tightness in my chest. Not sure what this is, since this is a new symptom that has only been occurring for the last couple of months. Like many others on this site, my husband is my biggest supporter. He is my Rock. I don’t know how I would manage without him. My older girls understand some too, but are married and out on their own. But then there is my son, who has lived with me this way for over half of his life. He really doesn’t understand me or my symptoms. He thinks it is all in my mind. That I can somehow “think my symptoms away.” I’m not sure just how to explain my pain and other symptoms I can experience in a blink of an eye. I’m sorry this is so long, I just needed to vent…..

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • veromana
    1 year ago

    I dont have diagnosed MS but three separate doctors think I have MS im just waiting for my neurologist appointment. I understand how you feel i have a lot of the same symptoms you have and like you my boyfriend is my biggest supporter but my sister and father think nothing is wrong with me that im a hypochondriac and its just stress causing my symptoms. if you need to vent you can always message me im always ready to listen to someone and their feelings. I know how it feels to feel so crappy and you tell someone and they disregard how you feel and think its nothing when they have no idea whats going on.

  • DonnaFA moderator
    2 years ago

    Hi GrannySharon,

    You are absolutely not alone, we’re always here to listen anytime you need to vent.

    It’s wonderful that your husband and daughters are supportive. Your son may come around with maturity. You’re welcome to share any of the articles here if you think they may help him understand in time. Thanks for being part of the community. – Warmly, Donna (MultipleSclerosis.net team)

  • Poll