Lonely and frustrating

I was diagnosed August 2008 with RRMS. Since that time I have had my ups and downs but always pushed through it. Always lived my life with 110% energy. Every day. In the beginning of June 2014 I was suddenly overcome with this very very terrible symptom of the disease called fatigue. Not knowing what was happening to me at the time I just kept pushing myself until I finally saw my neurologist and he gave how I was feeling a name. Fatigue.


Since the end of July 2014 I have tried 3 different CNS stimulants. Nothing so far even comes close to helping with my energy level. Especially when I “crash” physically on a daily basis. I’m only on my feet a few hours a day every day. This terrible symptom is VERY challenging physically. It gets very lonely and frustrating when I MUST lay perfectly still in a comfortable setting for hours at a time while my mind is usually still operating at 100%. The hardest thing so far is trying to convince everyone that I know how I feel every minute of every day. I get tired of hearing “but you look fine“. So much to say but not enough time to enter it all in using my thumb on my cell phone. So I just keep my chin up and keep fighting this every day. I have too.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (4)

Poll