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Hoping you have an Episode-Free day.

Being diagnosed 3-1/2 years ago, just after my 53rd birthday was a very unpleasant and terrifying experience to say the very least. How long do I have?…What do I do now?…What’s going to happen to me?…are just a few of the questions I was asking. I went through a panic mode and depression, not to mention anxiety.

I don’t have anyone to help or take care of me. What little family I do have, doesn’t get it. No one does unless they experience the symptoms first hand. The one person who helped me to get diagnosed has had it for the last 25 years and doesn’t like to discuss it. I’m going through this alone. It’s a nasty place to be…in it by yourself. I look for support groups in my area, but they are all telephonic now. I want to be able to sit down with a group of people in my shoes and talk, confide, listen; help and be helped. In todays world of social media, I don’t think such a place exists. AA meeting are held in meet up groups…why not MS?

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Lamm
    5 years ago

    Hi Tess just read what you were saying about a meeting with person to person contact, they do have some different type of meetings like this. My insurance assigned a nurse for me, to call and check to see how I am doing etc., and she told me about dinners they have with guest speakers that have MS and places they meet at times to talk. I suggest you talk to your Dr. and insurance, and keep digging for that info until someone decides to help you with that information. stay positive and keep pushing for the info you need !!! good luck 🙂

  • Tess author
    5 years ago

    Hi Lamm. I have heard about these luncheons and dinners that you talk about, but they are never in my area or near me. I will keep pushing though and I thank you for your thoughts and kind words.

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