mild damage

I went to see my neurologist today, who repeatedly told me my disease was mild, the damage was mild, & I should be living normally.

I’m not living normally; I sleep sometimes 16+ hours a day. I have developed severe anxiety (like, I sit & hyperventilate literally all day sometimes). I hurt, I’m tired.. you get it.

How can she sit there & tell me how I should feel? She isn’t me, she prescribes 2 different medications that “may cause drowsiness” added to my central sleep apnea & my MS.. I’m in a constant fog. I feel like the life has been drained out of me.

I spoke with my pharmacist, who is super awesome, & he gave me some suggestions to help with the energy level & inflammation. He suggested I switch from Robaxin to Baclofen, add fish oil, & cut back on my sugar, gluten, & dairy. He wrote out a list to take to my neurologist, she didn’t even look at it. I read off things to her & she just kind of shrugged it off stating “none of this has been proven to work”. She actually changed my muscle relaxer, thankfully.. so maybe that will help. But she belittled my disease. I realize there are much worse cases out there, but what’s wrong with being proactive? Why not do everything I can to prevent further damage.. needless to say I requested she make a referral to a specialist; she didn’t appear happy about it & told me that my insurance probably wouldn’t cover it.. but it’s worth a shot.

I’m so frustrated with her. I need to let it go, maybe she’s right, maybe it’s not as bad as I’m making it out to be, maybe I’m exaggerating it all in my head & I’m fine.

But I don’t feel fine.

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