Misdiagnosed for more than 20 years
Looks like I have been fighting MS since the mid 1980s.
Because my family did not believe I needed medical attention because I am a girl, I did not start getting medical attention of any kind until my high school and a different school in our city got involved and started forcing my parents to take me to the doctor. Then there were many years of I did not have medical insurance, but once I got it, I started going to the doctors for the different symptoms.
I was going to the same neurologist for over 10 years, on and off because of lack of insurance, before he started putting things together and tested me for MS. I was finally diagnosed in 2012.
The headaches get so bad, and are getting worse with each one now, I am ready to give up on life. I just can't take the pain anymore. The latest bad headache has left me continuously numb and tingling in my arms, hands, legs, and feet, and has left me with severe balance issues.
I have a cat who can tell when my MS is acting up, or getting ready to act up. She is my primary caregiver with a tiny toy poodle being her back-up.
Does your employer provide workplace accommodations due to your MS?