Multiple Sclerosis (MS) / Reflex Sympathetic Dystrophy (RSD)

One of my disorders is called Multiple Sclerosis (MS). The other disorder is called Reflex Sympathetic Dystrophy (RSD) I will always have hope that there will be a cure for these disorders someday.

I am a care free person and I enjoy life. My family is the most important to me. My husband of thirty two years passed away in 2016 of cancer and we have one son who is twenty nine now and I have three other sons from a previous marriage Timothy, John and James who are twins. I was diagnosed back in 2005 with two disorders which changed my life and a lot of things that I used to do I cannot do now like use to work in my yard, read and sew the things that I took for granted. I have not let these disorders get me down to much and I still can do a certain amount of stuff that I used to do and the two disorders that I keep talking about is Multiple Sclerosis (MS) and Reflex Sympathetic Dystrophy (RSD). What I have is two Neurological disorders that are circumstances relating to the nervous system.

One of my disorders is called Multiple Sclerosis (MS) which is a demyelinating disease, a non-contagious chronic autoimmune disorder of the central nervous system which can present with a variety of neurological symptoms occurring in attacks or slowly progressing over time. It has no cure yet and the exact cause remains unknown. Due to its effects of the nervous system, it can lead to long-term impaired mobility and disability in severe cases. Multiple Sclerosis (MS) slowly progressive autoimmune disease in which the body’s immune system attacks the protective myelin sheaths that surround the nerve cells of the brain and spinal cord (a process called demyelination), resulting in damaged areas that are unable to transmit nerve impulses.

The other disorder is called Reflex Sympathetic Dystrophy (RSD) also called Complex Regional Pain Syndrome (CRPS) is a disabling neurological disease involving nerve, skin, muscle, blood vessels and bones. Reflex Sympathetic Dystrophy Syndrome (RSD) also known as Complex Regional Pain Syndrome (CRPS) is a chronic neurological syndrome characterized by symptoms that include persistent moderate-to-severe pain, swelling, abnormal skin color changes, skin temperature, sweating, limited range of movement, and movement disorders. There is no cure.

I will always have hope that there will be a cure for these disorders someday.

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Comments

View Comments (6)
  • TammyJean
    9 months ago

    Hi Cindy,
    I’m so sorry for all that you are dealing with. You sound like a very strong woman! First and foremost, my deepest and most sincere condolences on the loss of your husband. May God comfort you and continue to give you strength. Thank you for sharing your story. Your story happened to be the first thing that came up in my Google search when I searched [ms & rsd]. I’m not yet diagnosed with MS, but I have a VERY strong feeling it is in fact what I have. Some of the symptoms I thought were RSD are also common MS symptoms, so I am now wondering if I had been incorrectly Dx’d with RSD back in 2010 or possibly have both, which is what prompted me to do a Google Search. Anyway, I am very curious to know if you were diagnosed with RSD or MS first and how many years apart were they diagnosed? Also, if you don’t mind me asking, what was the cause of your RSD? I actually had a work injury (ACL knee injury) that caused mine and i have never been the same since nor have I been able to work since. 🙁 I never had any RSD or MS symptoms until after my injury, so I am wondering if maybe RSD can bring on MS. Sorry for all of the questions, I am just intrigued and think I’m in the same situation as you and trying to put some of the puzzle pieces together to possibly help me get a proper diagnosis (FINALLY!). By the way, my MS symptoms started about 8 years ago from what I can remember, not long after my RSD diagnosis. I won’t even begin to discuss how negligent the doctors have been for the past decade or what it has cost me (and I don’t just mean money, which is least important). Anyway, I hope you are doing well and hope to get a reply. May God Bless you and your son abundantly with health, wealth, love & happiness!

    ~ Tammy Jean 🙂

  • RuGarz
    1 year ago

    I was diagnosed with CRPS on 2002 and ME a few weeks ago. It’s still overwhelmingly frightening

  • 1shl7bs
    1 year ago

    Hi CindyJH I just read this comment that you wrote last June and was interested in knowing a few things about your situation with these two very challenging diseases. I myself was diagnosed with multiple sclerosis in 2008 and I was just recently diagnosed with CRPS/RSD So I would like to know how you are being treated for the MS and how you are being treated for the CRPS? I hope you are open to sharing your information with me because I am truly happy to find someone who may be experiencing the same symptoms and challenges as I am in dealing with these two very difficult and Incurable diseases. I look forward to getting your response. Clare

  • TammyJean
    9 months ago

    Hi Clare!
    I am new here and not yet diagnosed with MS, but have a VERY strong feeling I have it as I have MANY of the symptoms (debilitating) and almost every other diagnosis has already been ruled out. I was actually diagnosed with RSD first and looking back I started experiencing MS symptoms not long after that. My RSD diagnosis came after a traumatic knee injury/surgery. One thing I noticed is that the RSD seems to have settled down more over the years and the MS symptoms have gotten way worse to the point of being debilitating. Anyway, I just had to reach out to you when I saw that you may be in the same situation as me. I am pushing hard for a diagnosis at this point so I can get treatment before I can’t cope like this anymore, so I can’t offer any advice or recommendations in that area, but I have lots of symptoms you can ask about. lol If there’s anything at all you’d like to ask, please feel free and I’ll certainly try to help. I hope you are doing well and will be keeping you in my prayers!

    ~ Tammy Jean 🙂

  • 1shl7bs
    8 months ago

    Hi Tammy Jean, I hope you are doing well all things considered. I am sorry for the delay of my response, I just read your message today. How are you doing with handling these two challenging diseases? Have you received any results regarding your MS diagnosis? I know how frustrating it is to manage the symptoms of both diseases so if you would like to ask me any questions or just share experiences feel free to reply. I hope you’re recieving effective medical care and support that is helping you manage your day to day Activities.

  • DonnaFA moderator
    2 years ago

    Hi cindyjh,

    I’m so sorry to hear of the loss of your husband. Please know that this community is here to share support. We’re glad that you’re here. -Warmly, Donna (MultipleSclerosis.net team)

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