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My 9/11

How does MS affect me: on September 10, 2015. I had a MRI done of my brain and spine. Previously I’d had a MRI done of just my spine. The 1st one showed some demyelination and the second one showed even more on my brain. On the following day (September 11) I received a call from my primary care doctor. Her words sent me into total shock: “the results from your 1st MRI showed some demyelination and it was confirmed on the 2nd one.” I asked her “What was confirmed”? She then told me that only those with multiple sclerosis would have demyelination and both my MRI’s showed it on the spine and brain. I held the phone trying to hold back the tears but couldn’t. She went on to tell me that it looks like I have MS and she’d referred me to see a specialist. I think I cried off and on for about a month and a half. I really felt that there wasn’t any light at end of my tunnel. My 1st appointment with my neurologist went great. After my appointment I felt extremely informed, and saw a light of hope and faith.

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Comments

  • Azjackie
    3 years ago

    Hi Slove!

    I am glad you have a great Neurologist. If you run into any financial difficulties know that you can contact the drug manufacturers directly for help. I wish I would have been told that from the beginning. As others have said on this site, keep moving. Meditation, yoga, and deep breathing are healthful for everyone, MS or not.

  • DonnaFA moderator
    3 years ago

    Hi Slove, thanks so much for sharing your story. I’m glad to hear that you felt more informed and empowered after your visit with the doctor.

    We’re happy that you’re here and please know that we are always here to share information and to provide support. We’re glad that you’re here! -All Best, Donna (MultipleSclerosis.net team)

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