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My Journey

My name is Amy and I was diagnosed in 1999. I had a terrible Neuro at first. I was relieved to find out I had MS because I just knew I had a brain tumor because that is what my grandfather died of. MS didn’t scare me because I have a cousin that is older than me and I’ve always known he had it. My Dr said “You don’t understand! You will be in a wheelchair in 5 years & dead in 10”

I put up with him for a year and when he kept telling me I’d get over the Avonex side effects I found another Dr. He was great!

I am on disability due to muscle weakness & cognitive problems.

I’m still mostly mobile as long as the temperatures cooperate. Too hot & I have noodle legs. Too cold I have muscle stiffness & pain.

My kids were very young when I was diagnosed so they have always known. They are the most compassionate people you will ever meet. My husband is amazing and so supportive I don’t know what I did to deserve him but I thank the Lord for him everyday.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • majscruggs
    2 years ago

    You are not alone, Dr told me I would be in wheel chair. That was 2 years ago. I am still standing. Use cane or Walker, still drive. Take myself anywhere I feel I can go. Never give up my name is Mary scruggs

  • Erin Rush moderator
    2 years ago

    HI Amy! Thank you for sharing a part of your story with the MultipleSclerosis.net community! I am sorry you had such an unfortunate experience with your first neurologist. Apparently, his bedside manner was just a bit lacking, to say the least. As you probably well know by this point, his statements were inaccurate and ignorant!

    I am glad you kept advocating for yourself and your health and that you have received better treatment and support from your second neurologist.

    I think it’s wonderful that you have a supportive husband and great kids. A good support system can make managing a chronic condition like MS a little (or a lot!) easier.

    Thank you again for sharing with us! We’re glad to have you as a part of the community.

    Best, Erin, MultipleSclerosis.net Team Member.

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