My MS Story

My MS symptoms started with numbness from the waist down. I woke up on May 18th 2016 & was numb. The numbness has never left only moved up the total right side of my body to the top of my head. Right hand numb but painful. Severe migraines, ear pain, eye pressure (pain) right side only. Anyway after several tests, MRI’s, CT’s, Labs, Spinal Tap, etc. I got my DX. Multiple Sclerosis. This has been a very emotional, painful journey so far but I pray the more I learn & doors God opens that I can learn to live a better life & hopefully help a lot of people along the way.

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Comments

View Comments (4)
  • Jerrychagolla
    2 years ago

    Well there are different stages you will be going threw like one you will be blind for a couple day and you eye sight will come back one side of the body will be weak like your right side of whole body if you can walk please continue to be as as active as you can be They are on soon you will realize that you were getting muscle spasms you would also get a weakness in your body but don’t let it stop you from doing what you got to do the positive the reason why I know about this my father was diagnosed with MS he had it 21 years before he passed on the past on into thousand seven and I seen and and when does all the stages you had to go through I was there to help them out I miss him I love him but all I can do is try to give advice to those that will except device that I give I hope it helps you out

  • DonnaFA moderator
    2 years ago

    Hi jerrychagolla! Our condolences on the loss of your Dad. Thanks so much for sharing your insights, and reaching out with your support. That’s part of what makes this community so wonderful. We’re so glad you’re here! -All Best, Donna (MultipleScerosis.net team)

  • zebra
    3 years ago

    so I started a month ago thinking that maybe this back, hip rt. groin was a bone problem. After 3 different injections with no avail, Ive come to what I hoped not being MS. I was DX’d in 1998 and always beem RR but I think Ive moved on secondary progressive. It (the symptoms) never go away. Now this pain is mostly rt. side is like 24 hrs.all day and getting worse. What elese can be done?

  • Christina Mattoni-Brashear moderator
    3 years ago

    Hi mshults14,

    Thank you so much for sharing your story and for being a part of the community – you’re definitely not alone here! An MS diagnosis can be an emotional roller coaster, and I’m sure members of the community will share their experiences with this. In the meantime, I thought you may find these articles helpful:

    https://multiplesclerosis.net/living-with-ms/surfing-an-emotional-tsunami/

    https://multiplesclerosis.net/living-with-ms/facing-emotional-changes-together/

    Please stop back and let us know how you’re doing! Take care,

    -Christina (MultipleSclerosis.net Team)

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