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MS and My New Do

I read a recent article by Devin Garlit. It was titled “Some Bizarre Life Hacks I’ve Adopted Because of MS”. I liked it so much that we are going to use that concept in our self-help group this month. Thank you Devin for the idea. I’ve come up with some as well. In the article he talked about his beard and his hair. I have a hair story as well!

I have struggled lately to get a hair style that I like and one that I can do because my right hand is getting weaker. And therefore, it’s harder for me to style my hair like I used to. I like it best about 3-4 inches below my shoulders, straight and with a slight curl under. I always get a undercut. That means that each successive layer of hair is cut a little bit longer so that it curls under naturally.

My hair is naturally curly and normally I use a flat iron to smooth down the waves and curls. I had to go natural because my right hand was unable to hold the flat iron, squeeze the flat iron and move the flat iron through my hair. Plus the hand fatigued very easily. This was very disconcerting since I have always liked my hair straight with a slight curl at the end.

I’ve been wearing it naturally (curly) for the last several weeks. My hair seemed to be getting curlier by the day. And therefore harder to straighten. So the combination of curlier hair and difficulty using the flat iron, I had to make a decision. So I began to wear it naturally.

I remembered a picture that I had from about 10 years ago with my hair shorter than how I have been wearing it recently. I like that look and I thought I could do that again. So recently I cut off about three or 4 inches of the curls. Instead of using a flat iron I am using a curling iron with the brush bristles on it. It is still somewhat difficult to get all the curl out, but it is working better than the flat iron. I also find with the heat of the bathroom, hair dryer and curling iron, I have to take a break so I can cool down. I can usually recover in about 10 minutes.

MS affects every part of my life, including now how I wear my hair. I haven’t really done an MS rant before, because I try to stay very positive and upbeat, knowing I am right where God wants me. I guess this could be considered a rant, because right now I hate my MS.

I hate the pain, overwhelming fatigue, decreased mobility, spams, cramping, heat sensitivity, muscle weakness, ringing in my ears, difficulty sleeping, cognitive changes, bladder and bowel issues and the combination of all of it together. It is not just dealing with one symptom, but all of them together. 24/7/365

BUT, I know I don’t have to be strong on my own. I am strong in the Lord and in the power of His might!

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Comments

  • Julie
    2 years ago

    I’m in the same boat. My left arm is so weak I really don’t have the strength to hold my arm up to dry or flat iron my curly hair. I am thinking about asking my hairdresser next visit what I can do. My hair used to be so thick it took forever to dry it. No more. It’s so thin now, it’s awful.

    I think women are judged by thinning hair more than men are. Or maybe it’s our vanity. I’m not sure but I’ve tried everything to stop it from falling out and regrowing. What do I know? Maybe it will look cuter curly. I also have to wonder if some of the drugs I’m on have brought on the hair loss. In the past 17 years, I’ve been on Betaseron, Novantrone, and Avonex.

    I suppose we just keep keeping on and do what we have to do. I love how fellow MS’ers support each other like this. Good health to all, Julie

  • joannmaxwell author
    2 years ago

    The side effects of our medicines can be worrisome, can”t they? I used my hairdresser
    every step of the way. She was a great help!!

  • 1lu5gnh
    2 years ago

    I recently cut my hair short thinking it would be easier to handle. Boy was I wrong, the super straight hair I’ve had my whole life has suddenly decided to be super curly. I really can’t do anything with it now. I’m so frustrated I can’t stand the time it takes to make it look anywhere close to decent. My arms and hands get so weak it takes me 3 times as long for me to fix my hair than when it was longer. I guess it’s good like my mom always told me “honey it will grow back, it’s just hair” is true.

  • joannmaxwell author
    2 years ago

    I know, It is So Hard to find the right way to turn our weaknesses into strengths! I worked with my hairdresser every step of the way! She was really good for giving me suggestions of products to use and other tips!!.

  • Nobu
    2 years ago

    I was on novantrone a few years back and my hair seemed to get curlier while taking the medication. It has stayed curlier ever since. I have worn my hair short for many years, and now there is so little I need to do with it. I do not have issues with my arms at this time but have always been low maintenance with my hair since I used to swim every morning before work – just towel – not rubbing, that will bring up the frizz. I also use a microfiber hair towel-turban to help the hair dry more quickly.

    Now, on those days that I don’t wash my hair, I use a spritz bottle to lightly dampen my hair and re-style. I also only use a wide toothed comb – a brush is just too hard on hair and can also bring on the frizz. You can add a little cider vinegar to the water and it will pump up the shine in your hair. jmaxwell – I hope you can embrace and love your curls

  • joannmaxwell author
    2 years ago

    Great suggestions! Thanks!

  • Nancy W
    2 years ago

    I want to see a picture with your new do. I bet you look marvelous! Thanks for sharing.

  • joannmaxwell author
    2 years ago

    I thought I had sent this reply before, but I see it is not listed. Anyway, please email me at jogmaxwell@gmail.com and I will send you pics!!

  • joannmaxwell author
    2 years ago
  • potter
    2 years ago

    I think the MS treatments have affected my hair, when I was on Rebif I kept losing hair. Then I started on Tecfedra my eyebrows grew back with a vengance, I have to pluck them everyday so I don’t look like a cave man. The hair around my face has never grown back. Specialist checked out my thyroid and told me I have a bouncy thyroid and it can’t be treated. I wear a pony tail all of the time because I have hair on the back of my head. I asked the doctors about loosing my hair if there was anything that could be done and they told me to buy a wig. My hair is getting too long but the last two times I had a beautician to cut it they have made it worse. How do you get a new do? Potter

  • joannmaxwell author
    2 years ago

    Wow!! Our bodies are a mystery for sure!! That doctor was very insensitive!! I suggest find a reliable hair dresser and see what would be her or his suggestion.

  • joannmaxwell author
    2 years ago

    Oh, my what an ordeal. Something out of the ordinary that I never thought the MS would affect! Maybe we should all buy wigs! Actually I really like that idea!

  • SherD92
    2 years ago

    I have the same problem with my hair! My weaker hand is my left hand, and my hair is straight as a board, and I can’t do a thing with it! I am SO glad I read your story. I don’t feel so angry now.

  • joannmaxwell author
    2 years ago

    Thank You! It’s good to know we are not alone!

  • joannmaxwell author
    2 years ago

    Thank you!

  • JustsayN
    2 years ago

    How insightrul. Now just have to deal with vision issues

  • joannmaxwell author
    2 years ago

    Thank you.,

  • Devin Garlit moderator
    2 years ago

    When I was diagnosed, I never thought it’d have an effect in my hair, but here we are! Very nice post!

  • joannmaxwell author
    2 years ago

    Thank you so much! I appreciate your feedback! I so appreciate these forums where we can connect with each other and share stories!

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