My Son is Miserable

I think my 29 year old son has MS. He’s had issues for the last ten years. Started with a bladder infection. Had a cystoscopy and was fine. Had problems with ears ringing and bothering him but attributed it to loud noise cutting wood. I think it was a cat scan he had and it was normal. He’s had numbness and pins and needles in his face. I think the doctor said it was probably due to sinus or something. He had palpitations and was light headed and the doctor sent him to the ER and all blood work and EKG was normal and he figured it was to do with the workout energy mix he was taking. Seems anytime something happened, it was always attributed to something or other and a doctor would give him a weird look and write a prescription that usually didn’t help. He has sometimes ignored some symptoms as he hasn’t had much faith in doctors and he said exercise usually helped how he felt.

Now he has his neck with pain and was referred to a rheumatologist which he sees tomorrow. But his head is bothering him and all of a sudden it’s worse than the neck. Not sure if it’s brain fog but it makes him where he doesn’t care to read or do much. He has been crying off and on the last two days, which is not something he usually does and it’s really hard to watch my grown son cry like that knowing I can’t help. I’m so worried.

It’s taken him over a month to get this appointment. I just wonder how long he has to suffer. He doesn’t have insurance either. I think he’s scared that he won’t ever get better and he is blaming himself for not getting this checked out sooner. I keep telling him to hang in there and we will get a diagnosis and maybe they can treat him with something that really will help him for once. I just feel so helpless. I am so overwhelmed and worried. Guess I’m just venting. Thanks for listening and if anyone can think of anything helpful, please advise. Thanks

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Comments

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  • aparks
    7 months ago

    My son was recently diagnosed with MS. I found this book to be extremely helpful and I hope it will be helpful for your son as well:

    ‘Multiple sclerosis and (lots of) Vitamin D’ by Ana Claudia Domene

  • WendyMinshall
    7 months ago

    I hope that your son’s appointment went well. It was actually a Rheumotologist that was persistent with the possibility with MS. It is because of her that I finally went to the Mayo clinic and was diagnosed.

    I’m praying for your son, and for you as well. It hurts so badly to watch your child suffering. :/

  • Erin Rush moderator
    7 months ago

    Hi kaynic782! First off, I am so very sorry your son is hurting. As a mother myself, I know it is extremely difficult to see your children hurting! When it comes to chronic conditions like MS and RA, diagnosis can be a ling and winding road, so you can tell your son to quit beating himself up over not addressing the issues sooner. If your son needs financial assistance or emotional support, he may want to check out the MSNavigator program through the National Multiple Sclerosis Society — https://www.nationalmssociety.org/Resources-Support. Also, the Multiple Sclerosis Association of America has resources as well — https://mymsaa.org/. If it turns out that your son has RA, we do have a sister site dedicated to RA that you may want to check out as well — https://rheumatoidarthritis.net/. And, as a mom, you are doing what you can — supporting and loving your son as only a mother can. I hope he gets some answers and the treatment he needs very soon! Best, Erin, MultipleSclerosis.net Team Member.

  • maryelaperezpinkston
    7 months ago

    I’m so sorry you are dealing with this. And your son. I was misdiagnosed at 15. I got a diagnoses 4 years later and dealt with the same symptoms as your son it was awful. Tell him to not give up. It will get better I promise! I have been taking LDN for five years and it’s changed my life. Go to Dr Mercolas website. He has some great info about MS and how you can live a normal life by managing it. Also tell him to sign up for medical it’s free 🙂

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