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My story… sort of

Hi everyone here, I have written here before but mostly just read. I was reading how the heat affects people with MS, I have found that the cold is so much worse for me!! The heat not much at all. hum? I was diagnosed with MS about four/five years ago, my first symptoms were at about ten at night while my husband and myself were relaxing watching a little TV. I started to feel a tight feeling in my chest and torso and of course my mind went straight to I am having a heart attack, so we went to the ER and they ruled all of the usual things that cause those symptoms and told me to see my regular doctor, that it seems like I have some sort of nerve damage. Of course my husband was for lack of a better word… flipping out, I wasn’t concerned, so to shorten this story after about two years of seeing doctors I was finally diagnosed!! Still to this day my husband still flips out when I have visible symptoms. me,i take it in stride, & I know it is what it is and to just live my life as fully as possible and enjoy each day, no pity party here, I hope others with MS can see their way to do the same for themselves.

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Comments

  • Sherry
    3 years ago

    I’d rather be hot than cold, but noticed this summer I’ve had spasticity in my abdomen down to my calf muscles. I have found pain relief using a TENS unit for the past 2 weeks during waking hours. I’m a nurse and am on my feet all day. I strongly believe that “a body in motion stays in motion”. I’m 59 years old and was diagnosed with MS (relapsing/remitting) 19 years ago. I am thankful I can still walk and work. I live a healthy lifestyle by eating right, getting a good night’s sleep, not drinking any alcohol or smoking (never did), and I don’t take any unnecessary medications. I just hope I can maintain my strength for the rest of my life. I wish everyone the best with this unpredictable disease.

  • DonnaFA moderator
    3 years ago

    Hi, Sherry, thanks for sharing your story and your good wishes with the community. My sister is a nurse, so I understand how demanding and stressful your work can be. It’s wonderful that you have found a protocol that works for you. -All best, Donna (MultipleSclerosis.net team)

  • ArielM1288
    3 years ago

    i love the heat!!!!!!!!!! and hate the cold…soo same here!!! but I make sure that I enjoy everyday and make the best out of it

  • MSFighter
    3 years ago

    Same here!!! The heat affects me if I am unable to cool my body down when I do get very hot. However, when it’s cold outside, I walk like the tin man in Wizard of Oz before he gets oiled! (Best analogy I can think of, use it all the time) the spasms are pretty bad.

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