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New at all this!!!

Yes, I have MS…I woke up on 05/30/13, walked into my kitchen at 5 AM, like I do every morning to make coffee and at just the flip of the light switch on, is where it all began. My eye sort of fluttered. I didn’t think anything of it, other than an eye twitch. The following morning it happened again. This time, I covered my right eye and noticed that my left eye had a blurry line going across. I blinked several times, trying to make the blur “go away”, but it didn’t. The next 24 hours I continued to “test” my left eye by covering my right eye. By Saturday morning I knew something was wrong.

My father is a doctor, my mother a nurse, so I called them. My dad (a psychiatrist) thought I might have a sty. I felt like my eye was getting worse so by that evening I called and made an appointment with my optometrist. I got a young “on call” doc who told me to hurry to the clinic–she was thinking I might be having retinal distachment. By the time I got to the clinic I was in full panic-mode, scared something horrible was happening.

This night was the first time I heard the words optic neuritis. I was encouraged to get an MRI, to test for MS. I didn’t even know what that was (other than I knew Montell Williams had it). Within the next week I had an MRI, confirming MS, I had 3 days of IV steroids for my eye. My eye eventually healed (pretty quickly) and 10 days ago I started Tecfidera. My world has been rocked, but so far, I have NO SYMPTOMS!!! Yes, I am blessed, but I am scared too, of the unknown. I have had no side-effects from now being on meds for the first time in my life (I’m 45) so everyday I wake up not sure what to expect. I wasn’t sure if I should start meds without ever having symptoms but my neurologist said it will “slow the progression”…so of course I opted to start.

I hate being afraid of the unknown…is there any hope? Do some of you with MS have little or no sysmptoms?????

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Comments

  • DR.R.B.CHOUDARY
    6 years ago

    GOOD NEWS TO MS PATIENTS.hi this is dr rb choudary.i am a physiotherapist& psychologist.i am very happy to share an importent and most useful information about ms. that is most most most neglected by the doctors who are giving treatmrnt to ms patients by thair busy working life styles and patients aswell.that is ms is a psycho somatic disorder..psycho somatic disorder means (PSYCHO=THOUGHT;SOMATIC=BODY;DISORDER=DISEASE)the the root of origen for this complaint lies in thoughts of a person and its effects shows on body as symptoms .we are getting treatment to the body(symptmatically) and we are not getting treatment to the root of origen ie thoughts of the person.thats the reason MS became incurable.theare is 100present posibility to make ms incurable to curable……. onece chek it to yourself that if you heard about any good positive news relavent to you your symptoms gets a bit subsided.if you heard any bad negative news relavent to you yours symptoms becomes most worst even though you are using medicins.we have doveloped a cousiling programme to make ms incurable to curable .mail me on randrinstitutes@gmail.com

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