Newbee

Hello. I have had all these symptoms for 4 1/2 years now but not a diagnosis. I’ve had several doctors tell me “sounds like you have MS.” But won’t give me a diagnosis. I have been recently diagnosed with Fibromyalgia. But I have done my own research and I feel like I have MS.

It has been a really hard 4 1/2 years for me. Totally changed my life. My faith, my husband and my grandchildren are my reasons to keep going! I pray every day for those who suffer to find a peaceful painless day.

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Comments

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  • tunderdue
    5 months ago

    Hi, Newbee. If you really want the official, MS diagnosis, you may get it from a neurologist, as did I. I left that neurologist, since he seemed so accustomed to my disease, he did not show much compassion. Then, I got a second neurologist, who took tons of MRIs and never bothered to reveal what she saw. I guess it’s always best to get diagnoses for what ails us. But when you’ve got MS, or anything else for which there is no cure, and no clear explanations for why you feel or act as you may do, what’s the point? At least, that’s what I think, in my most sarcastic, life moments.

  • Erin Rush moderator
    5 months ago

    Hello Dee53 and welcome! I am sorry you have worked so long to receive a diagnosis. If you haven’t done so already, you may want to check out this information on the diagnosing process for MS — https://multiplesclerosis.net/diagnosis/tools-your-doctor-will-use-to-make-a-diagnosis/. There are very specific criteria used to reach a diagnosis of MS and you may want to make sure your physicians have done all the required testing. Also, there are some conditions, like fibromyalgia, that mimic MS symptoms. Here is some information on those conditions — https://multiplesclerosis.net/diagnosis/ruling-out-other-health-conditions/. Regardless of what condition with which you are diagnosed, I hope you are getting proper treatment and support! Thank you for reaching out and good luck! Best, Erin, MultipleSclerosis.net Team Member.

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