Paula’s MS Story

My first experience concerning Multiple Sclerosis came when I had an optic neurosis in my left eye. I was referred to an optometrist who told me that I would probably get MS, and there was nothing that could be done to treat it. He said to go home and not worry about it. This began a long period of denial for me.

I needed to pace myself

During this time, I experienced a great deal of fatigue. I learned that I had to pace myself because any overexertion would put me out of commission for up to three days. I would have some good days and even several together. I managed to take care of my family, which included my husband and two children. My profession as a teacher took a great deal of my time and energy. I never felt like I kept up with everything like I wanted to. I could always imagine what I wanted to get done but never quite master it.

When things got harder, I realized I needed to talk to my doctor

Time passed and I could tell that many things were getting more difficult for me. Going up and down stairs or outdoor areas was my biggest clue that something was really wrong. I decided to go to the doctor but I was still in my denial. My general MD referred me to a neurologist and ordered an MRI for my lower spine. The neurologist assured me that he needed an image of my brain since he actually was pretty certain that I had multiple sclerosis. My MRI was very clear and the doctor’s diagnosis was correct.

I had some realizations

Now that I had a diagnosis, my neurologist asked me if I was still in denial. He had a sense of humor, and we laughed about it and I said that I was not. I agreed to begin treatment and get infusions. I continued teaching but hired a friend to help me in the afternoons. This continued for five years. I finally realized that I was getting too worn out with teaching and wanted the best for the students as well. I decided to take early retirement even if it wasn’t the full amount. I also applied for disability with my retirement plan. This would help me out until I reach 65 years of age for Medicare.

Adaptability and positivity

Now I can only volunteer at the school for one afternoon a week since it it allows me to feel somewhat productive and see others. I am trying to catch up on cleaning and sorting and catching up on jobs around my house. After more than 20 years since first learning about the possibility of having MS I am no longer in denial. I get infusions, pace myself and still try to complete given tasks. It is hard to deal with fatigue and not being as fast due to spasticity and aches. Though it can be frustrating and a bit discouraging, I work to keep a good attitude by staying positive.