The Silver Lining?

Having lived with Primary Progressive MS for 27 years, I’ve experienced most all of the symptoms that make this disease often horrifying. Somehow I’ve managed to avoid any nerve or other pain associated with this dis-ease, and found ways to deal with the stress that’s weighed on me for someone.

Mindfulness Based Stress Reduction (aka MBSR) has been a Godsend. For the time when I fell on the floor and couldn’t move, it taught me that being still and just focusing on my breath, can be a good thing while you’re waiting for help to arrive.

Being a disabled father of two girls was difficult, watching my wife take on the roles of a healthy dad, but my disability taught both girls compassion and kindness. One daughter started her own Muckfest team, while the other got herself into Stanford University with an essay contemplating the malfunctioning of her dad’s brain.

I don’t mean to belittle the struggles I and so many whose lives have been affected by this disease go through. This can be a devastating disease. It most likely will slow you down, but sometimes you see more living life in the slow lane.

– James Joyce

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


View Comments (1)
  • Donna Steigleder moderator
    1 week ago

    @namaste, Thanks for sharing your story. You’re right that many times through the struggles of life we can see how they have blessed our lives –enriched our experiences my in some way making each one more real and in-the-moment. I think that we sometimes appreciate more that which we work harder to achieve and cherish and maybe that’s true too for the value of our lives. Your family sounds very fortunate. Donna Steigleder, Moderator

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