Quite a Ride

When I was first diagnosed over 35 years ago, the neurologist who I saw said, " you will be fine for a while, then, you will go downhill". As he was saying this, he drew a graph on his blackboard. It was almost a downward slope. "No exercising." Then he said, "you won't remember anything I have said."

All I could think was "what?!"

I left, shaking my head. A nurse said, "his nickname is 'Dr.Death.' He is always negative". I found a new neurologist. She was great! Encouraged exercising and gave suggestions that were interesting. Now, many years later, that initial experience taught me to be my own advocate. Listen to the professionals, but I am in control of my life.

My self-advocacy has brought me to this point

I am walking, sometimes with a walker, and exercise often. I have been a peer support counselor for newly diagnosed patients, organized golf tournaments for MS, and just keep staying positive. Yes, some days are better than others, but I try to "roll with the punches." Life is not always easy. Many, or should I say, most people have burdens they carry. Helping others is a great option. I worked with hospice for quite a few years and saw so many brave people living their best lives in the face of terrible pain and facing their death. Definitely put my life in perspective!