Reclaiming your life after MS
I have had multiple sclerosis for over thirty years and have been blind, paralyzed, numb from the rib cage down, unable to walk, unable to talk, and had no balance. Four years ago I started handicapping my house because, although I kept having exacerbations, I was no longer recovering fully. I knew it was only a matter of a few short years before I would end up in an assisted living facility.
If I walked from one end of the house to the other, I had to rest. If I walked down to the mailbox and back, I had to take a nap. If I got a pan out from under the kitchen cupboard, I had to crawl across the floor to pull myself up on the sink. I fell every other day. Incontinence kept me housebound... and I live ALONE. Scary. My speech was so slurred, even friends and family had a difficult time understanding me.
My mother did some Internet research, and applying what she learned, I climbed back out of that hole. Last year, I wrote a book: "Fighting the Dragon: How I Beat Multiple Sclerosis," to get the word out about how hyperbaric oxygen can be used to heal damage and low dose naltrexone (LDN) can be used to control multiple sclerosis. In December, I hiked six miles. I am starting work on a second book because, through my research, I found LDN was effective for many of the autoimmune diseases, as well as some cancers, and AIDS.
Excerpt (in response to those who fear stepping outside FDA recommendations - both HBOT and LDN are FDA approved, but I used them "off-label"):
. . . if your car kept breaking down and the mechanic you took it to kept doing the same thing to fix it—but it did not stay fixed, you would question the mechanic’s competence. Maybe the mechanic pulled out a technical manual. “See. I fixed it exactly as the manual said. This is the industry-approved way to solve this problem.” When the car broke down again a week later, would you be satisfied?
Probably not. You might decide it is time to replace the car. But that might be too expensive. So, what to do?
If you were smart, you would probably try to find a new mechanic. You might ask your friends who they would recommend. You might search on the Internet to see if other people had the same experience with their cars . . . and what caused the problem. You might telephone some repair shops to get some idea of what they thought the problem might be.
If you found a new mechanic and that mechanic looked over the car and said, “I have a solution that is not in any industry-approved repair manuals, but it is safe and it works,”—would you walk away and go back to the first mechanic who never got it right?
Why is your health worth any less than your car?
Regular naltrexone, at a 50 mg. dose, is used for opiate addiction and alcoholism. Low dose naltrexone (between 1.5 mg and 4.5 mg) is NOT covered by insurance . . . but can cost as little as $25 a month. It is "off patent," which means there is no money in doing the research to prove it works (which is why it is not FDA approved for MS). The side effect? Vivid dreams. It also took away 80 percent of my fibromylgia pain in two days. From 4 exacerbations a year on Avonex, I have now not had ONE exacerbation in 4 years. LOVE IT!
Do you celebrate your MS Anniversary?