They say a change is as good as a rest. Me I'd like a rest from all the changes.
I'm 45 and was diagnosed with PPMS (only) a year ago. Looking back, hindsight being a wonderful thing, the signs have been there for probably 10 years or more but only really started to take a real hold in the last 2.
One of the hardest things apart from the frustration of not being able to do the things I once took for granted, are the ever changing ways MS likes to beat me up.
Every day starts with a series of questions, what is going to work today? Are my legs going to carry me downstairs without having to stop for a rest? Am I going to be able to remember what I went into the kitchen for when I get there?
So the day goes on challenging, my mind and body, sometimes pushing me to a point where I just have to stop and admit defeat and sink into the sofa and rest.
I wonder constantly what the future will bring, but if I have realized one thing it's that life goes on and all the worrying won't change a thing, but it would be nice if I could have a few weeks of sameness, without an ever changing battlefront.
How many specialists did you see before finding "The One"?