Social security questionnaire

Just a quick thought that I needed to express and wanted to see how many people out there have gone through the same thing. While on Social Security Disability, has anyone ever received the questionnaire to determine if you are still disabled? I just want to express my frustrations with this questionnaire. I don’t even know where to begin but I’ll give you a few things that bother me. First, the questionnaire asks you to walk them through your daily routine. I am not quite sure how to describe my daily routine. Which daily routine shall I give them? One of my “good/better” days? My days I can’t get out of bed? My bad days? Then they ask questions like how often do you walk, do you need assistance? Can you shower independently? If you need help, describe. Do you do any gardening? If so, for how long? Do you cook main meals? How often a week do you cook? Etc…..I could be here all day writing about this so I’m trying to cut it short. My point is, on an “off/bad” day I can’t do much without assistance or when I’m having a day where I have absolutely no energy to get out of bed, I do nothing or bare minimal. On a good day, you wouldn’t know that I’m sick. If I have a few good days does this mean I shouldn’t be on disability? Great, find me a job that I can call out for two days, work one day, call out for a week, work for 3 days, call out for two more…and so on. I don’t know how to answer these questionnaires. Why doesn’t anyone get the fact that MS is a highly unpredictable illness??? I, sometimes, am afraid to be in my garden outside even if it is only for 15-20 min on a good day because Oh My Goodness, I’m not inside doing nothing like someone on disability should be doing! I just don’t get it, have you ever had a similar experience? Please let me know. Thanks so much!

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