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Stop already

It’s been 20 years since my diagnosis. Recently my neurologist retired. In looking for a new one, my insurance company informs me I have to complete another MS work up. Seriously?!? More neuro tests? Lumbar puncture? MRI? Thank you BCBS.

I recently had to give up my job after 17 years and now I can’t have any meds unless I go into debt thousands of dollars.

According to my primary, my most recent MRI “only showed one new lesion and that’s not bad.” So much for hoping he’ll be able to help.

Am I alone in this?

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  • Maryloubee53
    3 years ago

    Never be afraid to fire a doctor!
    Second, third , even fourth opinions!
    We will not be quiet anymore.

  • Maryloubee53
    3 years ago

    Apply for disability. You can get Medicare and Medicare part D to help with meds.
    Good luck.
    Be your own activist……it works.

  • tfs
    3 years ago

    I am sorry you are experiencing this problem with insurance and the retirement of your neurologist. It is very difficult. I just want to give you some encouragement. Keep looking for a neurologist. Hopefully, you have some care through a family physician.

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