Stop pretending like you get it, because you truly have no clue!

Harsh title, I know, but sometimes an MS patient just needs to scream that out every once in a while. One of my main symptoms is overwhelming, bone crushing fatigue.

I work part time as a medical assistant and would honestly love to work full time, but because of fatigue, I’m unable to. When you try to explain that to co-workers or a manager, they look at you like… “well everyone gets tired, try to sleep more and you’ll feel better…”.

If it were only that simple, right? Or the most famous line is, “I know what you mean, I’m exhausted too!” I so want to tell that person, “If I had your kind of tired, I could still manage to work full time; you truly have no clue, so stop pretending like you do.”

I have been living with MS for almost 15 years now, but have only been diagnosed for 9 ½ years. With each passing year, the fatigue becomes worse. As hard as it is to accept my limitations, I have to, sometimes I have no other choice (kicking and screaming all the way most of the time). One of those choices was working part time. I know I am physically unable to work full time due to the fatigue.

My goal is to continue to work until my kids are at least through high school. Time will tell. When that time does come, then I really will kick and scream to the top of my lungs…

Stop pretending like you get it, because you truly have no clue!

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