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Strangest day of my life

I was diagnosed about 8 years ago now.

When I had my first major MS attack I was in a little town in eastern Idaho going to school, married for a little over a year. I woke up one morning and all of the sudden there was two of everything. I was a little concerned and my wife was in a bit of a panic but she had to work that day and I had the day off so I decided to go to a walk in clinic near our apartment and sent her to work. This meant she had the care so I walked to the clinic, which was close, and they sent me to the nearby hospital, which was not so close. I had to have an MRI. It was a bit alarming when to get to the MRI machine I had to walk down a few halls, through the ambulance garage, and then out of the hospitol to a seperate building with warning signs all over it.

The doctor at the clinic told me I had MS and I had to go see a neurologist in a bigger town since there wasn’t a local one. The double vision lasted through a few rounds of oral steroids but thankfully has not come back. I have had trouble with my vision a few times including almost two years now that I am fighting with my right eye being blurry and almost color blind. They tell me it is optical neuritis and I have tried IV steroids a couple of times now and they tell me for now all we can do is wait and see .

The brain fog/ inability to focus and remember and the fatigue are costant and frustrating but I am blessed that they are not actually debilitating. I am tired of being tired.

Hopefully some day my right eye will be right again but I doubt it and so I hope I can leaarn to cope. Life with MS is hard and people that don’t have it, don’t seem able to understand. My wife tries and I love her for it. I am glad to have found this site where I can hear from people who really do understand

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Comments

  • June White
    6 years ago

    Nick,
    I have had double vision many times since I was diagnosed 15 yrs ago. It is very disheartening to have your vision mess up and usually at the most I opportune times. Like you, people really don’t understand MS because on the outside we may look just fine. My husband has always been there for me and it sounds like your wife is trying very hard to understand and help you. In that way we are both fortunate. You will just have to get used to telling family and friends that you must get your rest. If they don’t understand give them some literature on MS to read. If they still don’t, then don’t let them bother you. You know your body better than anyone and you must take care of it. Good luck.
    June

  • Lisa Emrich moderator
    6 years ago

    Nick,
    I vividly remember the morning that I woke up and couldn’t see through my right eye. Three specialists in one day (in three completely different medical facilities) with the news that my vision would get worse before it got better. Sure enough, I went temporarily blind in that eye for almost three months. I still have altered vision although my brain has learned to adapt.

    It’s true that many people just don’t understand MS and what it’s like to live with such an unpredictable disease. I appreciate my husband who supports me and does his best to understand. We are lucky to have great spouses.

    Glad to have you here.
    Lisa

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