Last updated: March 2019
I wrote this poem about my MS life for a poetry slam. It turns out the poetry slam had too few what I call poems. Although I did not win I was able to read my poem. I would like to share it now:
By: Lloyd Little
A burning sensation from my neck down my arm,
Like a stinger in football that did me no harm.
My first unknown symptom occurred in July,
To determine the cause I would try and try.
For eight long months I asked, what’s wrong with me?
There’s numbness and pain no one else can see.
When the neurologist called I turned to my wife,
“Honey, I’ll have MS for the rest of my life.”
It was 1986 when I took that call,
Today I’m still walking and standing tall.
When the pain and fatigue in my legs and feet,
Get too much for me my wife says “take a seat.”
Any treatments for MS state “it may or may not”
The mystery of progression is what I’ve got.
The symptoms worsen but at times take a break,
There are side effects with drugs so I do not take.
I‘ve been competitive my entire life,
"I can beat this,” I said to my wife.
My foe is MS, I am challenged in every way.
Yet I arise each morning to face a new day.
I use a cane if the walk is too long,
But I leave it home when I’m MS strong.
My opponent is a disease without a cure,
But it’s in for a battle of that I’m sure.
I fight MS daily, but I have a team with me,
My team is my wife, my friends, and my family.
Thank you for the opportunity to share my story and I wish the very best to all my MS friends. May you be positive in the challenges we all face.
What does advocacy mean to you as someone living with multiple sclerosis? Please select all that apply: