The Beast

ms_stories0905When I was first diagnosed is when I had my second child in 2001. Did not realize what it was and wondered why she said I am real sorry a couple times.

Having more knowledge of the disease does not garment the fact that each day will be the same like other diseases. Adjustment to each day is a challenge but I must adapt to the situation. I right now struggle each day to keep active and does not change the outlook of that day!

Since I walk funny I make that an entertainment, I have MS I am not drunk. A journey we all face in different ways. may you all be blessed with strength and endurance–

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (12)
  • north-star
    4 years ago

    Get a walker for when you’re going out, people will see you differently. I use a sporty one with three wheels (not your grandma’s version), it works like a charm. People stop wondering what’s wrong with you. It took me so long to get over myself (my husband also had to adjust), I wish I’d done it earlier.

    Even if you only use it when you are having a bad week, or when you go out to dinner and want to have a glass of wine, give it a try. Best $180 I’ve ever spent. (PS: At least once a week someone stops me to ask where I got it.)

  • Dianna lyn
    5 years ago

    I can relate because since my diagnosis in 2007, I have had to first learn how to talk..my speech would slur..and learn how to walk…i had to use a cane for balance issues..all over again, and trying to remember the correct word to use..WOW..it’s really..hard everyday..with a pounding stabing headache..every day is a new day..i exercise, I eat vegs…i do my best every day to fight, but I refuse to let MS get the best part of me..i am a broken vessel .i know, I accept now…i love everything now..every moment of it..

  • Dalene
    5 years ago

    Oh my, that could so be me! I cannot walk a straight line, my husband gets upset with me because my pace is slow and I am on one side then the other of him, and sometimes I bump into him. Lately falling has been a surprise, I am upright and then I am not! Ugh! So I have a cane, which I hate using, so I only do when I am on uneven turf.MS has many surprises in store, I really don’t want to know what is next!!

  • laura
    5 years ago

    I feel your pain ive only been diagnosed not even 2yrs had my first major relasp and had to learn how to walk all over again!!! This disease is not very nice and really hard to deal with!!!

  • Sue
    5 years ago

    Yep! I totally understand. My biggest issue is balance, which causes me to wobble (like a Weeble!). I started taking Tecfidera this week and my face flushed a little bit the first day. My daughter suggested that instead of sunburn, I looked like I’d been drinking, particularly because of that wobble! Pretty funny, although at times it may not be. I find that exercise focusing on core and balance DOES help (I’m no longer bouncing off the walls as I walk down the hall at work). You have to laugh when you wobble or when you drop silly things one after the other or … you get the picture!

  • laura
    5 years ago

    I have a cain I walk with all the time!! Right now mg legs are not wanting to work and im in sooo much pain!!! Has anyone woke up and you feel like your drunk and you litterally look like it too my husband thinks I took too much med but I dont ive woke up that way a few times I feel people are judging me!!! I do my best too do what I can but doesnt take much too wipe me out!! Im used to falling out of the blue!!! Its hard and I feel awful most the time I have a motorized wheel chair but no lift so its not helping me out!! Sometimes I just feel hopeless!!!

  • Tom
    5 years ago

    I have the same issue since I was diagnosed in 2008. I now make jokes about it to make people more comfortable when I start having walking, cognitive or speaking issues. It helps make life easier.

  • Donna author
    5 years ago

    I find that does work, people get more comfortable with that

  • Sandy
    5 years ago

    These words come out of my mouth all the time. I have even had a policeman stop and question me at Mardi Gras once for weaving & wobbleing, thinking I was drunk. I take my cane with me everywhere now.

  • Donna author
    5 years ago

    I had a police man stop me when I was driving home from work because I was swerving. I told him the truth that I have MS tired from work and did not realize that I was swerving, so close to home, he let me go and told me to be careful>

  • Lisa Emrich moderator
    6 years ago

    Donna,
    You hit the nail on the head. Each day presents its own challenge and requires adjustments and adaptations. I find it helpful to think about being flexible and patient with whatever situation arrives. Not always easy to do, but important to my mental and physical health.
    Thanks for sharing,
    Lisa

  • Donna author
    5 years ago

    You welcome, Did not know that MS had different stages, now the BEAST has put me on a second path adjusting again which effects every one in my life mostly my family. Since Dec,26 now I am adapting to the new world off disability, Still fighting not giving up. Soon enough things will settle again in a different way!! Take care Lisa

  • Poll