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Triggers in MS

Hi. I’ve just read part of the story shared on triggers of MS and can fully relate to the fact I too had meningeal cockle meningitis as a baby. My parents were given no hope & I was given last rights.

Fast forward 50 years and here I am!? Yes I have MS. Some days I find it frustrating as I look so well… how can I be having a bad day? Nerve pain and short term memory are my worst symptoms.

Yea life sucks for lots of reasons, but I get back up brush myself down & get on with it. Learning all the time. I’m now living with MS for 21 years, it doesn’t get any easier but is still manageable. Rant over.

Many thanks,


This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Erin Rush moderator
    10 months ago

    Wow, Lavinia! What an incredible story! I am so glad you survived that bout with meningitis.

    I don’t think you sounded “rant-y” at all! You were just sharing your experience and your thoughts.

    I am glad you took the time to share just a small part of your story with the community.

    Thanks for sharing with us!

    Best, Erin, Team Member.

  • 11Little
    10 months ago

    About MRIs
    My last MRI was over a decade ago. I am in a support group. Many members have regularly planned MRIs. When I am asked if I am going to get one I tell them probably not. If monitoring their progression of MS is their desired choice then who am I to tell them otherwise. They asked me how I monitor my progression of my MS I tell them by counting my steps to the paper box each morning. For over fifteen years I have taken thirty-one steps. If it.takes more I know I am having a possible exacerbation. Just this past March my steps number has increased. My steps are now between thirty-three and thirty-five. I would think this increase may indicate a possible increase of scar tissue. I do not see the need for a brain scan to tell me there may be more lesions. It saves me time and money. I see no upside to having knowledge about the number of lesions on my brain as long as there is no way of treating them. I am comfortable with my step counting method for interpreting the ebb and flow of my MS progression. I take only gabapentin for pain. I take it three times a day and sometimes a fourth of my activity of the day has increased my foot pain. My mental toughness and lifelong competitiveness serves me well. I take on MS as I took on my past
    opponents as an athlete and coach for over 50 years. I play to win. I trust my will to win keeps me ahead of my MS progression.
    Besides after thirty-two years since my diagnosis at the age of thirty-four I am still walking to my paper box each morning.

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