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I have been reading a lot of stories about peoples varied experiences with the dreaded MS. The lack of understanding from our family & friends of our symptoms has really upset me, but it also got me thinking…I have come up with a great ‘visual’ to describe how I feel when I get fatigued-‘it feels like I have small sand bags all over my body & I am trying to move with them on.’ I am not ‘just’ tired. You cannot ‘cure’ my symptoms with sleep, exercise or PT!

I have had MS for over 14 years & I remember telling my boys (10 & 12 then) that this was not a death sentence, I would still be Mom but I would just have to lie down & rest sometimes but give me 5 minutes & I would be fine. That was 14 years ago. I have slowly decreased in my mobility over the last 3 years going to a cane & now a walker. I must go out of state for my sons’ wedding next month, I am a little leary about the plane trip & hotel, but I think I have made all the calls/preparations (I will let you know after I get back). My son has told me that he will dance with me even if he has to hold me up! I will use a wheelchair at the wedding so that I can last longer because I am determined to last the whole night!

This is a daily ordeal we live with, but with the support of my wonderful husband I will thrive the best I can!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Dianna lyn
    4 years ago

    Julie, thank you for your post! I also have had to deal with MS for years now (looking back, I had told my children the same I had just needed to rest for awhile during the days I was tired) but, I still kept going….i attended my daughters wedding in 2009 and I wasn’t in a wheelchair..thank the Lord! And now, to this day I give the Lord the glory I am not in a wheelchair yet? Thank you Lord! I do remember my neurologist telling me in 2007 in two years, that I would be?? Huh? I have learned everything all over again how to walk, talk, and remember things differently now..praise the Lord..yes, I give the mighty Lord all the credit because, I could not do this by myself..i am way too little. Way too little to get on that plane by myself without a wheelchair but he is with me..i just got back from visiting my family, and yes I was very scared but I did it..thank you for your post and you can do it too…

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