Well, I Woke Up This Morning…

I was diagnosed in about 2016 or 2017. It took two years to see anyone (not my choice). Probably should have been diagnosed in 2008, but my neurologist at the time said my reports were “indicative”.

The back and forth of MS

The neurologist said, “Ahh, you don’t look like you have MS; check back in about 5 years.” I then went into nursing school, had lots of side hustles, and was a multitasker. All hell broke loose HARD after 2 years. It’s official. I endured the stress of 6-month MRIs and medications. Later on, I was still stressed and went a year without MRIs, medication, and was trying to take care of my mother, because my father didn’t seem to be able to. No one could “see” it. Finally, an MS specialist said that it looks like you have slipped into progressive MS. You should start Ocrevus treatment. Aside from my scoliosis and chronic depression, which have worsened with age, this back and forth with MS was the worst.

How do I caregive when I need a caregiver

And I seemed to be the only one to be a caregiver, when I can't even take care of myself. And I cry all the time for no reason, and have forgotten who I am. I can’t even keep up with my 3-legged fur baby. Oh, and I finally got disability after 3 tries, the last time with an attorney and an appeal. 50 is the “magic” age, I was told.
Yeah, not wanting pity. It took me an hour to type this story. The lack of support is hard, and bless my 26-year-old son, he really tries, but he’s 26. Blessed.