Well Meaning Words, "But, You Look So Good!"
Last updated: November 2015
After living with RRMS for almost 30 years now, like others that have heard this said to them (But, You Look so Good) I am sure they are tried of biting their tongue just like me. I just wish people would understand that just because you have MS does not always mean you are in a wheelchair! I lost most of the vision in my left eye 3 years back. 10 years ago I had 2 eye surgeries on both eyes which did help. This was from Optic Nerve damage with MS. Seems to be very difficult for others to understand, mostly I hear-"Yes, I have vision problems too!" The same thing when I mention fatigue, my friend will say - "Oh, I understand I get very tried too!"
I just wish that when people say things that are not informed about MS they would 'Think' first! There is a lot of information out there and it is very easy to look up on the internet all about MS. This disease is a very difficult one to live with daily because it is like a roller-coaster, that is why it is so important to try & stay positive. I am very fortunate to have a husband of 40 years by my side who makes me laugh (does not feel sorry for me) and 2 wonderful rescue pups that entertain me as well! My son has always cared but never makes a big deal (this is very important) and I am very grateful for the wonderful friends who have always stood by me no matter what! Living & learning about this disease has not been easy, but I think taking each day as it comes & not stressing-out over what will be has been the best for me. You have to think of life as a Great Road Trip. If you spend too much time looking back at where you've been, You'll miss what's ahead! You really have to do what is best for you.
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