Well Meaning Words, “But, You Look So Good!”

After living with RRMS for almost 30 years now, like others that have heard this said to them (But, You Look so Good) I am sure they are tried of biting their tongue just like me. I just wish people would understand that just because you have MS does not always mean you are in a wheelchair! I lost most of the vision in my left eye 3 years back. 10 years ago I had 2 eye surgeries on both eyes which did help. This was from Optic Nerve damage with MS. Seems to be very difficult for others to understand, mostly I hear-“Yes, I have vision problems too!” The same thing when I mention fatigue, my friend will say – “Oh, I understand I get very tried too!”


I just wish that when people say things that are not informed about MS they would ‘Think’ first! There is a lot of information out there and it is very easy to look up on the internet all about MS. This disease is a very difficult one to live with daily because it is like a roller-coaster, that is why it is so important to try & stay positive. I am very fortunate to have a husband of 40 years by my side who makes me laugh (does not feel sorry for me) and 2 wonderful rescue pups that entertain me as well! My son has always cared but never makes a big deal (this is very important) and I am very grateful for the wonderful friends who have always stood by me no matter what! Living & learning about this disease has not been easy, but I think taking each day as it comes & not stressing-out over what will be has been the best for me. You have to think of life as a Great Road Trip. If you spend too much time looking back at where you’ve been, You’ll miss what’s ahead! You really have to do what is best for you.

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