Skip to Accessibility Tools Skip to Content Skip to Footer

Looking for advice and willing to try new things to help my symptoms.

The thought of MS was bouncing around the minds of my doctors around 2009. At that time my feet where in pain and were numb. One day, while living in Toronto, ON Canada, I noticed that I could not speed walk/run to catch the subway train in time. Something was very wrong. My body would not do what I wanted it to do.

Still able to walk around the city, I began my visits to a neurologist downtown. He diagnosed me with Clinically Isolated Syndrome, CIS. I was in denial. it must just be a pinched nerve. As symptoms progressed and MRI scans came up with new lesions, the neurologist said I am beyond CIS at this point and I should begin therapy immediately.

I started Copaxone. I was on it for a year and there was no luck in slowing any progression. It had become harder to walk for more than 10 minutes, I was always tired, and my motor functions were less controlled. I stopped Copaxone and began Rebif.

Now on Rebif for the seventh month, I feel the MS consuming me. Only able to walk from the door of my home to my driveway, if feel my weak spine and clumsy legs barely carry me through. My hands and fingers have lost some feeling and control and hot and cold are a very different feeling now. Hot = dizzy, mind fog. Cold = stiff and achy.

Luckily, I have a great circle of family and friends for support. I know they wish they could do more.

At this point, while on Rebif, I am also trying to take matters into my own hands and trying diets. I am currently experimenting with gluten, dairy free paleo diets. I am not sure it works until I eat gluten foods. Then I do feel the difference gluten adds t my mind fog, however, it does not help my walking which is what I want most.

I have read about how great people are doing with their MS but they do not seem to have symptoms as severe in the first place. Not being able to walk is a huge issue in live.

I am reaching out in hopes to find more remedies for symptoms and I am open to trying new things.


This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Misadventure
    5 years ago

    Pam is correct in her comment, also try Acupuncture and Thai Chi? Bob

  • plwilly
    5 years ago

    Jen, I was diagnosed with RRMS in 2000. It seems the symptoms of ms vary widely from one patient to the other. I can tell you I have recovered the ability to read, write and walk after a major exacerbation brought on by a low fat diet. In fact, I almost died. Be very careful with your diet. Be sure not to eliminate healthy fats. Supplementing essential fatty acids is important, too. I take CLA, evening primrose oil, vitamin e and CoQ10 among other supplements. I still have to walk with a cane because of dizziness issues. I have to continually work out to keep muscle mass and strength in my legs. Hope this helps. Pam

  • Poll