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Overlooking to turn the water off, anyone??

Hello everyone,

This is just one story that happened during  the middle of the night, but it scared me so badly I have to talk to someone. I’ll try to bebrief. I have primary progressive ms dx in 2011. I’m 61 female,on mitotranxone +2 years diff. with bm’s. My dr. gave me rx laxative which caused a mess last night. I did my best to clean everything and myself up but did not turn the shower all the way off, could not feel the water on my legs.Downstairs neighbor woke us all up hour later, he wwas noticing some dampness, so my husband ad 2 boys mopped and cleaned for the next hour or so. They are looking at me like I’m I don’t know what; have now no confidence in me to take care of myself, the list goes on and on. I feel perfectly wretchedly horrible at the moment. And today is my birthday. Some birthday. No presents but shitty towels to wash-sorry, I really feel bad. MS is really much worse in daily living than I ever imagined when first dx’d.

Thanks for listening…vicki

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  • north-star
    5 years ago

    It must have been awful. It’s hard when something so intimate is out in the open for strangers to see and deal with.

    I hope you’ll be kind to yourself, the MS you have is what it is, if you’re struggling it’s okay. You were three peoples’ good deed for that day. You also did your best to clean up; that, and saying thanks, is all you can do. You’ll never leave the shower running again!

    I hope you won’t think this is dumb, but Fred Rogers (Mr. Rogers) said so many profound things about struggle and the importance of being your real self, I don’t know where to start. He was more than a friend to children and their frazzled mothers. He was also an ordained minister, his show was his quiet pulpit.

    Favorite quotes:
    “I know how important is is to give up our expectations of perfection in any arena of our lives … it’s important to give up—maybe daily— the longing to be perfect. Of course, I think we want it so strongly because we reason that if we are perfect … we will be perfectly lovable. What a heavy burden! Thank God we don’t have to earn every bit of love that comes our way.”

    “If you could only sense how important you are to the lives of those you meet; how important you can be to the people you may never even dream of. There is something of yourself that you leave at every meeting with another person.”


    Your story touched me, I’ve also had to deal with bowel and bladder malfunctions. Kind of goes with the territory for a lot of us. You’re in good company. If it’s not too late, happy birthday! Hope you had cake. Have some now! 🙂

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