Zero to Sixty
I am a 59 year old woman with Secondary Progressive M.S.. I was diagnosed only three years ago with RRMS but was re-diagnosed (is that even a word?) with Secondary Progressive this past year. It was like going from zero to sixty mph in a car in five seconds! One day I'm fine, the next day I woke up and was paralyzed on my entire left side from head to toe! Since that day, it's like living with a "terrible twos" toddler - you never know what you're going to get on any given day! I've never had a period of "remittance" only a progressive parade of new symptoms and progression of current symptoms. Although early retirement as a special education teacher was met with disappointment and sadness, finally facing the fact that I could not meet my student's needs allowed me to focus on meeting my own needs. I was very excited to hear recently that there are currently 40 (that forty, 4 and an 0!!!) studies being conducted as we speak on the progressive forms of M.S. Unfortunately there are no medication regimes for the progressive forms of M.S. but physical therapy and a positive attitude go a long way in helping me to be as functional as possible. I will be following the new studies on progressive M.S. with anticipation!
How many specialists did you see before finding "The One"?