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Ampyra issue

  • By Tsukihime1long

    I was diagnosed with Progressive MS last July. Well, I was prescribed Ampyra (which, I was told) is not “technically” a MS medication even though it helps keep me walking. I called Acorda and was told they did away with the PAP because they are going generic at the end of the year. The medication is $2,500 a month and when I called the company, they told me that a generic price will all depend on my insurance company, the mail order pharmacy they use and the manufacturer the pharmacy uses. I do plan on asking my insurance agent because I have to re-negotiate insurance for next year. I was just wondering if anyone else has run into this issue with Ampyra. I apologize, this is my first post and I don’t even know if this is the right forum and if this is appropriate but I am just looking for advice/guidance.

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  • By Erin Rush Moderator

    Hi Tsukihime1long! You are in the right place! Thank you for posting. Since many MS medications are quite expensive, I know many of our members have had to negotiate with insurance companies or use aid programs to help with the costs for these treatments. I hope your agent is able to negotiate better terms for you and that you get a definitive answer from the company very soon. Have you looked into co-pay or assistance programs? I know if you have insurance, that you may not qualify for some programs, but I wanted to share this information with you, just in case. Here is the specific co-pay program for Ampyra — https://ampyra.com/cost-patient-assistance. And here are two reputable programs for assistance — https://www.pparx.org/ and https://www.needymeds.org/. I hope this information helps and that you also get some feedback from our community members as well. Good luck! Best, Erin, MultipleSclerosis.net Team Member.

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