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Vision problems

  • By Nick

    I have not been able to see out of my right eye for a couple years now. My left eye sees 20/20 my right eye was 20/80 last time it was checked and that eye was almost completley color blind. I have tried multiple rounds of IV steroids but nothing has helped. In fact I am pretty sure it is getting worse again. Now my right eye is so blurry I can just barely make out rough shapes with it I am hoping that someone will look at this forum that has had success with something other than IV steroids at solving a similar problem to this and will tell me so I can talk to my Doc about it. I am scareed I will be completely blind or that there is no better with this eye and it is permanent

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  • By b pickard

    Hi Nick. I also have vision problem’s. My right eye also. Last round of steroids did nothing. Eye exam showed nothing wrong with eye and 20/30 vision. Eye Dr.feels it is brain related. Duh. Neurologist says it is vascular. Sent me for Labs and get another MRI on Wednesday. I can’t even describe what my eye does. I feel lost all the time. Feel like I am a space cadet. Better if in a dark room. I am able to use medical cannabis which makes me not notice my vision i issue. Very very frustrating. I have been told it will not go to the other eye. But who really knows. Best wishes to you.

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  • By Nick

    I don’t know if this will give you hope or not but I have gotten used to the problem. My other eye has compensated and so it is a minor problem. It is frustrating and I can almost always see some of the blur but it does not stop me from living. Hopefully your problem will settle down and go away. I hope your doctors are right and it won’t go to the other eye but I have been lied to so many times that I have little trust in doctors, really they are wrong a lot not try to lie to me but still. I really hope you find something that helps. If you do let me know and I will do the same, good luck

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  • By chili820

    I’m new to Ms, just diagnosed in August, but think i have had it for years. Been diagnosed with belles palsy about 5 times due to facial numbness. Finally went to see Neurologist when i started having tingling, burning sensation down and difficultly moving my left leg. after a battery of test finally dx with MS. Several months ago i noticed, esp when i’m tired, i get a very bright semicircle in my peripheral vision field. it is so bright and has triangles around the edges with a prisim effect (reminds me of a reses peanut butter cup wrapper). when it starts i loose my peripheral vision. I can’t tell which eye it is because even when i close my eyes it is there. usually after a few minutes of lying in the dark with my eyes closed it will go away. It usually on lasts about 30 minutes, but have been noticing a more increase in blurred vision. My MRI did not show any brain lesions either.

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    • By Nick

      According to the doctors I don’t have any active lesions either but I guess that means they are just old lesions ruining things still. Hopefully things get better as you get treatment. I hate the vision issues but all the other symptoms suck as well so all I can figure to do is be glad it isn’t worse. I won’t be mad if it gets better but I don’t expect it will.

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  • By kjmac

    Nick and the rest of you! Lol.
    I just wanted to add my experience/vision problems. I have had ms problems masked by back injuries and ignored by workers comp Doctors. Looking back it seems my first episode was baseball practice my freshman year in highschool. First back (T5-7) injury at tire store and surgery at age 25 and #2 was in 2001 (L4-S1), took over a year to get the surgery. Staph infections while in surgery so they opened me back up to irrigate for 4-5 days. I was having weird symptoms that wasn’t realated to the surgery but Dr’s were thinking scar tissue or infection!
    On big issue was my right eye pain but the left eye periferal prizms and blindness was strange. Then the big black dot in the line of sight in my left eye, known as the ms dot. I have very blurred vision in the left eye too. I also have what I call the “Connect the dots”, Black lines going to black dots all over my left eye….my twin brother has the same thing, he calls it the broken windshield. Last big exacerbation I only saw white out of my left eye. My right eye is now blurry too with a faint blurry dot and blurry vertical line down the middle of it. Also have camara flash when I blink and double vision when headlights are coming at me they are stacked on top not on the side of one another. Now I have swelling around my eye, temples and forehead. I call it monkey head, it looks like my forehead has pushed out across my eyebrows.I have a lot of pressure and headaches behind my eyes.
    Nick you must have lesions in the brain. I do. Both frontal lobes, deep white matter. Scattered and in the Occipital. I have on they can see on my spine (Conus). Good luck and I wish you the best. Have you had an LP?

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    • By Nick

      Well kjmac thanks for sharing with us all. According to my neuro I don’t have any active lesions on the MRI but I am worried anyway. They didn’t use contrast last time so I wonder if that affects what they can see. it is difficult and most others don’t understand but I get it. I hope it gets better for you. Good luck

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  • By kjmac

    Nick,
    I’m sorry to hear they didnt use contrast…that MRI didnt do you much good! That is what lights up the active lesions. There are so many sub Parr Doctors out there that call themselves “MS Specialists” that are Clueless. I ask them questions about things and they want me to bring them the documents. I want to tell them to eat it, you should know this crap! Im paying you, you do the research! I had a Lumbar puncture done and read by the MS Specialist 1.5 yrs before my dx and he said it was normal but the understudy gave him an odd look. He was stumped so he referred us to the university and they said really symptomatic, few lesions lots of symptoms, normal Lp! The Univ. Sent for test that never happened so I left and went to a referred clinic (Big Name in Oregon) same story there so sent me to seattle for second opinion. Right before Seattle I had a stroke or seizure? Face went numb, couldnt open my eyes or mouth to talk and major trunk spasms/convulsions. After 20 minutes I started crying uncontrollably. No control ove my emotions. After seattle I got dx’d. I found out none of the doctors had the report of the Lp so I got curious and got the nubers. Protein was 77, Gram stain had a rare mononuclear cells, Lymph was high, monocyte low and CSF Albumin high.
    It said abnormal on top of the report. Albumin is CSF/Brain burrier. Dont be afraid to get another Doctor.

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  • By Nick

    Thanks for the encouragement. It is great to know I am not alone in my experiences. I had a LP that helped confirm my Dx 9yrs ago. I have just recently realized how little my neurologist knows but he is still better than the last guy. I am in the process of switching to a MS Specialty center locally. I have heard good things about it and it gives a whole team instead of just one Doctor so that is supposed to help. Thanks for sharing

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