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Life with MS During the Holidays - MultipleSclerosis.net

Editorial Team- We recently asked our community members to participate in a survey about how they handle the holidays, and over 100 people shared their thoughts and experiences with us! First and foremost, we want to say thank you for taking the time to provide your feedback and help us better understand the unique experiences associated with living with MS during the holiday season.  As we know, the holidays can be a wonderful time to celebrate, spend time with friends and family, and hopefully enjoy some downtime.  In fact, almost everyone who participated in our survey said they plan to make the... Read more

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Meghan Pcsolyar- I’ve always been the type of person to find comfort in helping others. During high school and college I would travel to Honduras to live in an orphanage, spending time with the girls there and doing various volunteer projects around the compound. When I was diagnosed with MS I knew that the best way for me to process and accept it, was going to be to help others. The second therapy I was put on was Plegridy. I was actually the first person in the country to be approved for this drug. It was a brand new drug and I... Read more

Kim Dolce- If you’re at least 55, you’ve already lived through a minimum of two life stages with the disease: Youth, menopause, and that long phase called middle-age in which you still might dwell. If you’ve experienced all three and you’re mostly stable, then you’ve been both lucky and resilient, a real trooper. You’ve made it to middle-age relatively unscathed. You have both life experience and disease experience, and you probably take both in stride more now than ever before. But what about the future?  What about the golden years and MS? The bad news is that there’s an unfortunate dearth of studies on... Read more

Editorial Team- As part of a new initiative to celebrate our incredible community, we introduce to you the first set in our series of interviews of MultipleSclerosis.net community members! We will continue to do this type of celebration of community members every so often, from now on! Members who are celebrated with this initiative are chosen based on their submission of most-read stories. Want a chance to be featured in articles like this in the future? Simply share your story here. We welcome yours! We are excited to introduce you to MultipleSclerosis.net community member, Penny! Read below to find out more about... Read more

Editorial Team- Inspiration comes in many forms: The love of a child. The purr of a cat. The solace of a good book. True inspiration and support sticks around beyond the easy, carefree times reminiscent of a TV commercial. It metaphorically holds your hand throughout your lowest moments and is still there to pull you from the trenches when the rough times finally subside. While life contains many small enjoyments, there are four main aspects that you in the community have found to be the most inspiring when faced with a tough moment: Family, Pets, Faith, and Determination. Family runs deeper than... Read more

Matt Allen G- Before I get into this I just want to say, I was originally thinking of posting this on my personal blog but I thought it might be better fitted here. There is a much different audience here and the more I thought about it the more I realized a lot of people may be able to relate and start a conversation which may help way more than anything I could possibly say. Since 2010 (when I was diagnosed) I have been through a lot in the world of Multiple Sclerosis. I may not have had this disease very long but... Read more

Cathy Chester- All of us know a caregiver. We either are one, have one or know of one. So we know how much work is involved in being a caregiver. That’s why I was thrilled to learn that November is National Caregiver Month. It’s a month to recognize all that caregivers do and let them know what they mean to us. My engagement photo, 1987, the year of my diagnosis. My husband’s role as caregiver increases every year. He does so with a smile and a lot of love. I am blessed to be his wife and I thank him for being... Read more

Kim Dolce- Let’s assume you are reading articles on this site not only for disease and treatment information, but also to seek some measure of inspiration. Maybe you feel you are less of a person now that you have some disabilities and can’t do what you once did; maybe you are now retired and feeling a creeping sense of worthlessness and unworthiness nagging at the back of your brain. You want to recapture the old pre-MS outlook you had that you can achieve anything you set your mind to in that peculiarly American rah-rah way. It’s what we do in this country. Self-improvement—the... Read more

Laura Kolaczkowski- I don’t know about your feelings, but I am pleased that summer is gone and the heat of the dog days of summer have given way to the cool nights of the fall. The heat this summer was brutal for me, since my multiple sclerosis doesn’t care for hot temperatures, and I spent an incredible amount of time indoors hunkered down in air conditioning. I love fresh air, but not when it is above about 80 degrees and 90 is nearly impossible. In place of high temperatures, I now get to think of other outdoor hazards; the changing colors of the trees of... Read more

Matt Allen G- A few years ago it’s like something changed in me. Noise was so unbearable! Specifically loud and sudden sounds. Everything is so loud and when it is sudden it can make me jump so violently I may drop/fling across the room whatever I am holding! One time I was holding a plate with cake on it (we were celebrating someone’s birthday) and a balloon popped causing me to fling my plate of cake into the air making a mess all over the floor. What the heck was going on? This was not your typical “a really loud noise made me... Read more

Cathy Chester- When you’re living with a chronic illness eliminating stress from your life is a full-time job. With the horror of the Paris attacks, keeping our stress at bay now seems almost impossible. Our grandparents lived through the Depression and World War I, our parents through the horrors of World War II. Our generation will never forget what took place on U.S. soil on September 11, 2001. Living forty minutes outside of Manhattan I knew many people working in or near our beloved World Trade Center. My brother was in Manhattan that day along with many others from our town and... Read more

Multiple Sclerosis Association of America - MSAA- Each year around this time, the Multiple Sclerosis Association of America (MSAA) conducts a Thanksgiving Card Competition to see which online card design will be the most popular card for 2015.  Now in its fifth year, this highly anticipated competition pits six online Thanksgiving Card candidates – turkeys, classic fall imagery, and even an adorable puppy – against each other, all vying for the top spot. Please feel free to vote and then watch to see if your favorite card will emerge victorious!  Once voting is over and the selections are tallied, we’ll let everyone know which card is the... Read more

Steve Woodward- So what’s been happening with you? It seems an age since I wrote anything on here. Well, it HAS been an age since I wrote anything on here. Looking back at my previous Power of Positive Action posts (part 1 and part 2), I can see that so much has happened since then. 1. I did have an MRI as suggested by my MS nurse. And [whisper it] I really enjoyed it. In my memory, my previous experience took part in some kind of dark, industrial, airless tube. This time it was light and airy, and the technicians managed to... Read more

Editorial Team- Here at MultipleSclerosis.net, we recently started a new initiative to celebrate our incredible community. We’re kicking it off with our first set in our series of articles that interview MultipleSclerosis.net members! Members are chosen based on their submission of the most-read stories. If you’d like the chance to be featured in articles like this in the future, please share your story here! We are delighted to introduce you to MultipleSclerosis.net community member, Devin! Read below to find out more about him, click here to read his story, and check back soon for the series’ next interview. What’s one thing you’d... Read more

Kim Dolce- After reading ominous, apocalyptic articles about global warming, hurricanes, mass shootings, and now a study released by the World Health Organization (WHO) claiming that processed red meat is as dangerous to humans as tobacco—I saw a year-old article in my news feed about the plausibility of creating a chickenosaurus within the next five years. I smiled gratefully at this shot of whimsy amid the news page doomsday prophesies. If we do survive all the natural disasters and civil violence, wouldn’t it be a kick to have some toothed, clawed and betailed poultry running around the backyard? Naturally I was intrigued. I... Read more

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Living with MS, there are always three things that I think about whenever I have to go somewhere for any length of time: 1) What will the temperature be? 2) How will I get around? 3) Will I be able to find something to eat that won’t put me into a coma? These questions might be slightly different for you, depending on your symptoms and triggers, but I’m betting you’re not thinking about what everyone else is thinking about! It’s a little like going on vacation when we were kids – What snacks can I bring? Should I take a... Read more

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