Maybe It's a Family Thing"Does someone else in your family have it?" It's one of the first questions that comes up when I tell people I have MS. As the jury is out regarding...Reactions0reactionsComments9 comments
Playing Catch-UpSometimes, I explain managing my MS like working a second job. Only, I do it at the same time as my everyday job. I often plan, replan, and restructure my...Reactions0reactionsComments10 comments
MS Versus the Swedish Healthcare SystemIn this article, I'm talking about the Swedish healthcare system in general terms. Denied insurance, medical debt, flare-ups due to financial stress, or getting approved for disability. These are just...Reactions0reactionsComments6 comments
Your Story of My MSThe first person I told about my MS was minutes after diagnosis. I'd promised a friend to give her a call after the doctor's appointment. As I breathlessly walked through...Reactions0reactionsComments3 comments
If It All Changes TomorrowFor me, MS appeared overnight. I went to bed worrying about an upcoming exam and was none the wiser that this night marked the spot for a considerable shift in...Reactions0reactionsComments13 comments
It’s on the Tip of My TongueMost of us probably know the frustration of wracking our brains for the word that was at the tip of our tongue a second ago. It's a pretty common occurrence...Reactions0reactionsComments57 comments
Mindful ManagementBeing of the scientific persuasion, I've been quick to judge "alternative" treatments and stuck to well-tested, peer-reviewed ones — the more clinical, the better. So mindfulness has always felt like...Reactions0reactionsComments3 comments
The MS Age RestrictionWhen I received my diagnosis, I was 22 years old. In the world of MS, the onset typically falls between 20-40 years of age. As you might imagine, getting diagnosed...Reactions0reactionsComments15 comments
Whose MS Is It Anyway?There is much to be said about MS as an identifier. Are you a patient? MS warrior? An advocate? A caretaker? Or is MS not even part of how you...Reactions0reactionsComments7 comments
The Lessons We Learn along the WayDespite being seemingly never-ending, we can view the ups and downs of MS from many perspectives. Being easy to despise, MS holds a broad spectrum of thoughts, feelings, and experiences...Reactions0reactionsComments13 comments
Are You Even Listening?My MS flips the script and tolerates heat much better than cold. I, therefore, spend a lot of time outdoors during the summer months, and this year was no different...Reactions0reactionsComments5 comments
Helping You, Helping MeGrowing up in a small-town, middle-class household, I was raised to believe showing vulnerability was a sign of weakness. The sentiment was consistent in school and on TV. Boys my...Reactions0reactionsComments5 comments
Double Minority and Learning from DiscomfortIn 2016, under the MS-hashtag on Twitter, I found an invitation for LGBTQ+ individuals to partake in a study. Periklis, the researcher, interviewed LGBTQ+ individuals to study experiences of belonging...Reactions0reactionsComments11 comments
MS, You're WeirdDescribing MS to someone who doesn't have the disease is a feat. Explaining the pathology is usually a non-starter, and using metaphors can become imprecise and confusing. When I try...Reactions0reactionsComments17 comments
The Quest for CertaintyI believe most of us would agree that uncertainty is a familiar feeling. I'm the first one to admit that I can be somewhat irrational when faced with uncertainty. The...Reactions0reactionsComments3 comments
Support: Look and You Shall FindI was struggling to pull the infusion rack with me as we were traversing the many floors of the university hospital where I receive my MS treatment."I will be asking...Reactions0reactionsComments4 comments
Getting a Second OpinionSomewhere in a folder, there is a small, crinkled up piece of paper with the words "primary progressive multiple sclerosis" (PPMS) written on it. My first neurologist handed it to...Reactions0reactionsComments3 comments
Coming Out and MSIn the months leading up my coming out, I watched everything YouTube had to offer on the topic. Alone in my room, I would straddle the line between anxious curiosity...Reactions0reactionsComments11 comments