Can You Really Not Care What People Think of You?I don’t care what people think. I’ve heard it plenty of times from plenty of people throughout my life. As a kid I said it myself when somebody was really...Reactions0reactionsComments2 comments
Foot Edema, What Causes It, and How I'm Treating MineAt first, I blamed my Sasquatch feet on prednisone. But two months after being totally off steroids, I still had bloated ankles and feet. I saw my PCP, and she...Reactions0reactionsComments12 comments
How Physical Therapy is Treating My Spasticity and PainI suffer from leg spasticity. The quads (front of my thighs) can get rock hard and hurt like the dickens, and the hamstrings (back of my thighs) are usually drawn...Reactions0reactionsComments20 comments
Where to Apply for MS Drug Copay AssistanceEach year, MS patients can apply for copay assistance from a number of resources. Although these programs are needs-based, the income cutoff is very generous. Patients whose income is as...Reactions0reactionsComments0 comments
Words MatterThose of us with chronic illness often lament the divide that separates us all. If only people would understand that suffering is going on right under their noses. It can...Reactions0reactionsComments0 comments
How Insomnia Threatens My Quality of Life, Dreams and AspirationsI need at least nine hours of sleep to process what happened when I was awake. So when I get less than that, the effects are immediate and debilitating in...Reactions0reactionsComments1 comments
Love Letter to the Crone I Am BecomingIt’s hard not to be totally preoccupied with my chronic medical problems. They can affect almost every aspect of my awake time and jolt me into consciousness in the middle...Reactions0reactionsComments2 comments
What MS is...MS is: Probably the most important thing MS has been is the thing I’ve pushed against for many years, so I could keep growing and making goals. It’s the critical...Reactions0reactionsComments1 comments
A Change in Symptoms and What I Did About It“Would you like to use a hat?” the lab tech asked. She had just drawn two vials of blood, and the last test was a urinalysis for which I had...Reactions0reactionsComments1 comments
Feel Me, Don't Fix MeWhat’s so hard about peace, love and understanding? First, my apologies to Nick Lowe, who composed the 1974 Elvis Costello hit “What’s So Funny ‘Bout Peace, Love and Understanding?” For...Reactions0reactionsComments1 comments
Is It Time for Me to Adopt a Pet?Several neighbors in my retirement community have small dogs and a few cats. The dog owners have to walk them several times a day, some ambling across the lawn near...Reactions0reactionsComments23 comments
The Upside of Being AbandonedOf course, there is no upside to being kicked to the curb in the beginning. It smarts like the dickens. It’s outrageous, too, let’s face it. It’s so easy to...Reactions0reactionsComments5 comments
You are Not AloneHow can we be among two million people on this planet who have multiple sclerosis and still feel utterly alone? We know of these multitudes intellectually, of course. But knowing...Reactions0reactionsComments4 comments
What Happened When I Explained My Disabilities to My Brother“So,” my brother began, “how long do you think you’ll be able to go grocery shopping by yourself?” We were standing in my tiny kitchen gabbing like we usually do...Reactions0reactionsComments3 comments
How I've Thought About Death and Its Influence on How I LiveWhen I was a kid, every once in a while the realization that I’ll die one day would suddenly hit me, freezing me in my tracks. My heart pounded in...Reactions0reactionsComments0 comments
Beautiful Day in the Neighborhood: Will We Ever Bridge the Gap between Fear and Compassion?It’s a familiar scenario. You park in a blue space, struggle out of your car and begin walking. A stranger spits a cynical remark at you. People like you make...Reactions0reactionsComments0 comments
The Wacky World of Silent MigrainesI have a shady past. If I ever thought about running for office, I’d have to drop out as soon as certain facts saw the sunlight. I refer not to...Reactions0reactionsComments9 comments
How MS Patients Lost Their Patience, Got Mouthy, and the FDA ListenedIn the old days of multiple sclerosis care — say, circa 1990 — the medical research community and a passive MS patient population were united in their hopes that they...Reactions0reactionsComments0 comments
Just Trying to Get Through the DayWhen someone asks how you are, what do you say? Fine, thanks.Still sucking air.I’m swingin’! Does that question drive you batty? Do you see it as a welcome opening to...Reactions0reactionsComments12 comments
Something Worse than MSMultiple sclerosis is hard to live with, on that we can agree. But I’ve heard some pretty strange things from people over the years about stuff that vexes them more...Reactions0reactionsComments2 comments