The Difficulty of Balancing Activity and Rest-and What I'm Doing About ItIf I had a hundred dollars for each time I’ve heard staying active is the best way to preserve motor function, I’d be among the top 20 percent wealthiest people with...Reactions0reactionsComments17 comments
The Hot and the Cold of It: How Temperature Changes Can Affect My MS BodyI’m not going to tell you what you should do about this. It’s not that I’m holding out on you, it’s just that I know you’ve read the official facts...Reactions0reactionsComments24 comments
States to Live in For People with Disabilities; Things MS Patients Who Want to Relocate Should Think AboutAre you using disabled services and planning on relocating to another state? Wanting to move to a state that has better services than the one in which you currently live?...Reactions0reactionsComments19 comments
How I Built My Healthcare TeamHow do you build a healthcare team? One professional at a time. During the earliest phase of my disease journey, the first two health professionals were the hardest to pin down:...Reactions0reactionsComments3 comments
How to Ensure a Painless and Successful Lumbar PunctureWe embattled MS souls have had our blood sucked into tubes through tiny butterfly needles, our bodies buzzed with tuning forks, stabbed with pins, pummeled with reflex hammers, stuck with...Reactions0reactionsComments8 comments
The Straight Poop on Bowel DysfunctionIf you suffer from constipation, sudden urges to move your bowel that make you desperately hobble to the toilet, fecal leakage between bowel movements—or the entire list, like I do--then...Reactions0reactionsComments9 comments
How I Manage Cold Weather SymptomsNow that temperatures in southeast Michigan have dropped, I have, once again, begun experiencing the particular symptoms cold weather brings. Spasticity gets worse for me in cold weather. It starts...Reactions0reactionsComments5 comments
Biological Warfare: Fighting Infection and MSSeptember can be a restorative, healing month during which daytime temperatures cool down enough to allow us to take outdoor walks again, something we avoided during the hot, humid summer...Reactions0reactionsComments9 comments
Famished but Full: Digestive Problems and Their Relation to MSWe who have MS are accustomed to experiencing sometimes daily changes in our body. We cope with pain, mobility problems, limb weakness, fatigue, and many other symptoms. It comes with...Reactions0reactionsComments26 comments
Jaws: TMJ, Bruxism, Their Relation to MS – And Why We're Gonna Need a Bigger BoatIn my mid-1960s youth, a jawbreaker was a newfangled kind of gumball that was not a regular on my candy store wish list. Every Saturday afternoon, I’d walk or bike...Reactions0reactionsComments13 comments
Ocular Aura, Asymptomatic Optic Neuritis, and Multiple SclerosisLast month, a strange thing happened. I was sitting at the computer engrossed in my moderating/writing stuff, when suddenly my vision went wonky, sort of the way it does when...Reactions0reactionsComments9 comments
Diagnosis: Denial, Its Consequences and SolutionsThink back to the beginning of this whole ordeal, back to that whack-a-do diagnostic disease pitch your docs threw out there that caused you sudden major brain freeze: Two or...Reactions0reactionsComments0 comments
Love, Interrupted: When Should We Disclose MS on Dating Sites?There has been a lot of discussion about when to disclose your MS to an employer. It’s a complicated, nerve-racking subject; the decision about when to disclose a medical condition...Reactions0reactionsComments2 comments
Physical Therapy and the Promise of Improved Mobility, Strength, and BalanceEvery so often, the nihilist in me comes to the surface. Not in a late 19 century Russian let’s-kill-the-Tsar-and-exile-all-the-aristocrats kind of way--and definitely not in a modern day ISIS extremist...Reactions0reactionsComments6 comments
Moving into Menopause with MS: Double Your Pleasure, Double Your FunStarting in December 2013, when winter launched itself in SE Michigan with single digit temps and hat-high piles of snow, my mother and I locked horns in a power struggle...Reactions0reactionsComments7 comments
A Portable History of MSEver wonder how far back in time people had MS? What they thought about it, and how they treated it? Naturally, our knowledge about MS in times gone by is...Reactions0reactionsComments10 comments