I had a slight meltdown while serving as a semi-official MS patient advocate last week. Please let me explain… I was invited to take part in a conference call organized by a... READ MORE
Well, this year I’m in no mood for Thanksgiving. Quite frankly, the general state of my life, health, and the world in general has me feeling grumpier than a starving vegan in... READ MORE
(The Multiple Sclerosis Association of America asked me to write a guest post for their blog, MS Conversations, on the subject of MS and relationships. This is the essay I wrote for... READ MORE
This video was originally published on Marc’s website on March 2, 2009 and is being featured on MultipleSclerosis.net with his permission.
Of late I find myself in uncharted waters, my creeping paralysis taking me to places in mind and body that I could never have imagined I’d visit. It’s simply getting harder and... READ MORE
This video was originally published on Marc’s website on March 18, 2009 and is being featured on MultipleSclerosis.net with his permission.
Ever since my diagnosis almost 14 years ago, I’ve been on a single-minded quest seeking not only the cure for the scourge that afflicts me but also answers the intangibles of my... READ MORE
Yippee, I’ve reached the end of the road of my Fasting Mimicking Diet (FMD). I’ve successfully made it through five days of dramatically reduced caloric intake, and I’m no worse for the... READ MORE
Well, that’s four down, one to go. I’ve finished the fourth day of my five day Fasting Mimicking Diet, and I’m happy to report that today was relatively easy. Much better than... READ MORE
I’ve now finished day three of my five day Fasting Mimicking Diet (FMD), during which my caloric intake has been drastically reduced. The how’s and why’s of the diet are explained in... READ MORE
Okay, it’s about time to cross day two off of my five day Fasting Mimicking Diet (FMD) calendar. Today my caloric intake was reduced from 1100 calories on day one to 800... READ MORE
As I wrote yesterday, from now through Tuesday I’ll be subjecting myself to a Fasting Mimicking Diet (FMD), in the hopes that severely reducing my caloric intake for five days will force... READ MORE
We must free ourselves of the hope that the seas will ever rest. We must learn to sail in high winds. – Aristotle Onassis Of late I’ve been navigating choppy waters, my... READ MORE
This video was originally published on Marc’s website on June 25, 2009 and is being featured on MultipleSclerosis.net with his permission.
Starting Friday, May 19, I’ll be subjecting myself to a five day starvation diet, in an attempt to beat back the disease that is slowly but surely consuming me. In effect, I’ll... READ MORE
On March 28, 2017, the new MS drug Ocrevus was approved for both relapsing MS and progressive MS, becoming the first drug to achieve FDA approval for the progressive form of the... READ MORE
First, let me preface this by saying that I am not anti-Ocrevus. As I’ve stated on these pages any number of times, it is my firmly held belief that MS patient advocates... READ MORE
Late last month I was contacted via email by a representative for the pharmaceutical company Genentech, asking if I would like to interview one of the researchers who played an instrumental role... READ MORE
Given my tendencies towards intense introspection, I find it hard not to dwell on the “why’s” of my disease. Primary among these why’s is “why me?”, a question infused with self-pity that... READ MORE
Later in May I’ll be marking the 13th anniversary of my official diagnosis with multiple sclerosis. Believe you me, the date won’t be punctuated by any festivities, but more likely with a... READ MORE