A Strange Event While I slept
I'm Steve. I am 58 and I've had MS for 1 year. Mine is PPMS and, at least as far as I'm concerned, my s/sx are fairly severe. I was diagnosed in June 2023. I had the steroid infusion (which didn't help much, sadly) and I'll start Ocrevus soon. I've gotten progressively worse with absolutely no remission. Anyway, last night, SOMETHING happened. I have these full body spasms that last from several seconds to several minutes. Last night, I think I had one so severe that I blacked out for several hours. When I woke, my calf muscle had intense pain. More importantly, I had more difficulty walking than ever before, a LOT more. I felt like I had been hit by a truck. Like I had lost something or like my MS abruptly got worse. I'm struggling to find the right words to describe it. First, does anyone have these kind of spasms? Second, Has anyone had an "event" like this and what does it mean?
Hi,
and welcome!
That episode must have been so scary for you. We always recommend contacting your doctor whenever you experience new or worsening symptoms, just to be safe. Spasms are pretty common with MS, but full body spasms are a bit different, so again, please talk to your doctor. I wanted to share this article (and the MANY member comments at the end of the article) about MS related muscle spasms -- https://multiplesclerosis.net/video/spasms-and-stiffness-life-with-spasticity. One of our contributors has dealt with body spasms and she writes a bit about them here -- https://multiplesclerosis.net/living-with-ms/quick-onset. So, you are not the only one experiencing this particular issue. Sometimes these events can come and go and any residual symptoms pass after a time. But, sometimes these episodes do mark an increase in MS symptoms. It really varies from person to person, so I won't even try to make any predictions on your situation.
I do hope the symptoms you are experiencing since the spasms do dissipate very soon!
Best, Erin, MultipleSclerosis.net Team Member.
